Hi,
Hoping to ask some questions/experiences of people living with lymphedema.
I had tissue viability out recently on a house call following surgery and a post wound site which wasn’t healing and the first thing I was told by TVN was to pursue a diagnosis for this lymphedema in the longer term. My good foot was playing up the day the team attended but as soon as they saw that they did a press test and went oh you have lymphoedema.
Why can’t they just test the good leg?
is this condition treated like having a Fibroid - where they try and tell you it doesn’t cause problems. I just ask because I tried to find out post surgery did I have this as a condition but got told we don’t know.
I’d been to the GP repeatedly over the past 5 years with nothing happening so I’m unsure why now I won’t encounter the same.
I don’t want to keep having surgeries I’d read over the nhs page which I now have to presume until I hear differently is what brought on the surgery recently, I’ve lost weight, limit alcohol, eat reasonably healthy, try to be active everyday even with the current wound. Brought some long up the leg compression socks.
I keep seeing lymphatic treatment done privately I presume, is this something you need to keep having or a cluster of sessions at a time?
Be really grateful to hear first hand versions if anyone got any help beyond the conditions name.