Anyone tried neurotoned

[Anonymouse27]

Advice welcome

i really struggling with my health. GP seems to be working towards ME CFS but no support at all with how to get back to work/get my life back.

I am looking for other options.

Has this worked for anyone?

Thanks

Hi @Anonymouse27 . I haven't tried it but I am interested in trauma response and research on vagal nerve stimulation. I've considered neurosym which is a device though v expensive so haven't taken the plunge yet.

I would say be cautious if you suspect MEcfs.

Do you suffer post exertional malaise? This is one for the defining symptoms of MEcfs. It's an abnormal response to normal activity that results in increased symptoms and exhaustion with a delayed onset.

You must be careful with any exercise with this illness as it can make you permanently worse if you keep pushing beyond what you're capable of.

To give you some good news, I have found a lot of support on FB groups and a lot of knowledge.

Learn about pacing. I use a gadget called visible which helps. There's a book called classic pacing too.

I'd advise you to go slow with any alternative therapies. Make sure the doctor has done all blood tests and ruled other things out.