Loss of social life

[Pinocolada]

I am really struggling with my loss of social life. I have vulvodynia and I never know how much pain I am going to be in day to day. I used to run with friends and go on long walks with a group of friends with kids the same age. The pain that moving around means I can't do these things any more. Friends were sympathic at the beginning but as they get ilon with their life's I feel completely forgotten about. I hate this illness and feel so isolated, can't believe this is my life. Has anyone else found friends fall away and how have you coped?

Bump

Definitely. I have 2x kidney conditions and fibromyalgia. Unfortunately I developed my kidney conditions when I was 16 so I lost my friendship group in high school as I couldn’t go out partying or walking round town shopping etc as teenagers do. Then because my health has only deteriorated I’ve never regained the friends. I know how you feel and how lonely it can make you. I wish I could tell you ways I cope, but I don’t and it makes me upset often when I see women my age (30) going out for brunches and having nights in together etc.

I hope things start to feel a bit brighter for you soon. Your not alone :)

@Whentheboatcomein I am sorry you have experienced the same. Just when you need the most support people fall away!

7 years in, my world is very small. We used to do quiz nights, meals out, Christmas nights out. Since lockdown I’ve met, on 3 separate occasions, friends for coffee. That’s it.
I work very part time which leaves me exhausted, but at least it’s human interaction. I’m heading for a very lonely old age. It terrifies me tbh.

Did you manage to get on top of your pain OP?

I am better than I was. I still have good days and bad days and on the good days I am pain free. It is hard to pinpoint the triggers for bad days. So it can still be difficult to plan things.

I hope you continue to improve 💐

I'm feeling this too! Since September last year my body's fallen apart, and it's very tough maintaining a social life when you're in pain and can't do much.

Having said that, today I managed a short lunch out as son was home from uni and drove us somewhere, and my pain was manageable today.

It's lonely isn't it?

I am doing better but yes it is so lonely.

I'm very glad to hear you're doing better.