Adenomyosis hell

[Daisydee87]

Hi

First time poster 😊

So basically I have Adenomyosis and awaiting a hysterectomy. Constantly in and out of hospital it's literally taking over my life. My partner is the least supportive person and gets really angry when I have to go to hospital or be admitted. I'm at a loss on what to do. We have two children and no childcare support, therefore me being in hospital means he needs to be off. Which I appreciate isn't ideal and can understand how this affects him. This then causes me great anxiety when I know I am having a flare up because of how he might react to me and the lack of empathy and support I receive.

Currently having a flare up and had a hospital visit today and his reaction to the whole thing now has us sleeping in different in rooms and not speaking. How do I deal with this? I am at the end of my teather with it all and right now I don't think marrying him is the right choice to make. No one understands this condition because no on around us has it and there isn't a lot of research regarding it. Not that I think this would make a difference.

Fed up and lonely 🥺

Thanks for reading my rant.

Oh gosh, this is so tough. I just had a big operation and husband didn't cope well. I can't help being let down. I was still breastfeeding so had to share room and now we are sleeping separately. It shouldn't be that you look after the children unless the worst case possible

Thanks I appreciate your reply. We aren't talking and haven't since last night. It's just not normal behaviour to be punished for being unwell is it x

I’m sorry you are so unwell but moving forward you need to look at your domestic arrangements as it’s no life being with someone who is so horrible when you are in need of support . I hope you get your operation soon 💐