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Chronic pain

Really struggling just now

8 replies

headache · 23/05/2023 22:54

I have fibromyalgia so constant pain and exhaustion and I am really, really struggling I fell like I just don’t want to go on like this. Years stretching ahead like this. I have no life. I’m about to drop my days at work from 5 to 3 on the one hand great that it will be easier on me but it’s that admission isn’t it that I’m too unwell to work full time anymore. And of course there’s the drop in income. I know I’m lucky in that I will still have an income. Many don’t. And I am so struggling all I do is work come home and go to bed, I’ve checked out of family life too. I have 4 teenage DC and I can’t cope with them and DH they are too noisy so I just retreat upstairs.

I know I am very depressed l, even sleep is rubbish I’m in so much pain i have to wait until I’m so tired to sleep DH says go to bed earlier. I’ve had so much different medications. I’ve had a constant headache since Friday. I spent most of Saturday in tears I was so down and upset Sunday I thought I had better try and do something with the weekend DH said oh you’re out your “mood” A mood - no I’m in utter anguish because I’m fed up if my whole body hurting so much from the soles of my feet burning to my head, my jaw aching from my TMJD, my ribs, my pelvis and sciatica which is the worst. Even tonight he said to me I hope you feel better in the morning he doesn’t get it, I don’t ever feel better in the morning, it’s a chronic illness you don’t get to feel better.

OP posts:

TiptoeThroughTheToadstools · 23/05/2023 22:59

@headache I also have fibro (amongst other things), it's shit. I haven't been able to work for 7 years now, the older I get the worse it gets too. It's hard, but you need to be good to yourself, listen to your body when it's telling you it's haf enough. Flowers


TiptoeThroughTheToadstools · 23/05/2023 23:01

No one understands chronic pain, my XH left me for someone else when my condition started to deteriorate and my parents think I'm fine, if I don't specifically mention that I'm in pain, which I never do because I'm in it all the time


Wolfiefan · 23/05/2023 23:02

Another one with fibro. It’s shit. Often asked how I am or if the pain is going away. Er no.
I have found the pain management course I did a bit helpful and it’s opened the door to other things too. I’m finishing a mindfulness course tomorrow. It has been helping. I’m taking magnesium supplements and doing open water swimming. I doubt I will ever be pain free but I can improve my quality of life.


headache · 23/05/2023 23:06

Thanks in a way it’s “nice” to talk to people who understand not that it’s a club you want to being to. I know I’m lucky I can still work a few days I know that. I’m peri menopausal just now too so that’s the icing on the cake!

@Wolfiefan I take magnesium too there’s not much I’ve not tried vitamin B12 injections is another. Draw the line at cold water swimming I’m very sensitive to cold (Raynauds)

OP posts:

backawayfatty1 · 23/05/2023 23:10

Fello fibro sufferer here. LDN (low dose naltrexone) has been a life saver for me. Heading to bed now but will come back tomorrow to elaborate


Haragon112 · 24/05/2023 16:10

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philipmccuntfield · 27/05/2023 18:25

I really am so sorry to hear this. I could have written this post myself. I have fibromyalgia too as well as lupus, arthritis, ulcerative colitis and now been diagnosed with a rare terminal illness. I wish there was something I could do or say to help you but I just wanted you to know that if you ever need anyone to speak to,you can always DM me


headache · 30/05/2023 23:01

@philipmccuntfield I’m so sorry to hear about your diagnosis. I don’t think many people “just” have fibromyalgia it never comes on its own.

i started my period today so also have lovely cramps to deal with just for added fun today. Oh the joys.

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