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Chronic pain

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Curable app

39 replies

Orangesandlemons77 · 26/04/2023 16:56

Has anyone tried this app for pain management? How did you get on? I'm thinking about it but unsure.

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Heroicallyfound · 26/04/2023 17:03

Yes I have, it helped me with nerve pain and panic attacks after a whiplash injury. Really good.

If you want to check out the information etc before paying for the app, have a google of the people who had input into it:

Nicole Sachs - JournalSpeak - journalling method free online. Her Instagram is good. Podcast The Cure for Chronic Pain and she has some YouTube videos.

Dr Alan T Gordon - book and podcast The Way Out and his Instagram is good

Dr Howard Schubiner - he recently did an interview with Dr Rangan Chaterjee and he also has a podcast

Look up the ‘Tell Me About Your Pain’ and ‘Like Mind Like Body’ podcasts

Also not sure he’s involved in Curable but Dan Buglio is on YouTube with similar philosophy like somatic tracking exercises etc

The originator of this stuff is Dr John Sarno - he’s no longer alive but he wrote a book and Nicole Sachs trained with him.

Orangesandlemons77 · 30/04/2023 12:09

Thanks for the reply. I'm still thinking about it. I'm thinking it might be an approach about coming off painkillers, which do really help me.

I'm unsure if it would be an approach compatable with continuing to take painkillers?

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Heroicallyfound · 30/04/2023 19:37

Yes, either way is fine

Orangesandlemons77 · 01/05/2023 14:19

OK I've suscribed, not sure if any others trying this on here might want to chat?

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GemmaPearl97 · 09/05/2023 21:27

Has anyone found this to work with pain ?

doadeer · 11/05/2023 22:00

Yes I would say this has 90% cured my back pain.

It's been incredible for me.

I was on max dose coedine, trying every medical procedure under the sun. I absolutely have neuroplastic pain and it's a daily thing to keep it in check.

Thermals · 12/05/2023 01:08

Would you mind sharing the kind of thing it involves? I'm unsure whether to try it

doadeer · 12/05/2023 06:38

The first step for me was education. To understand why my body was in pain and how it's triggered in the mind. But to validate that all pain is real.

Then I did a lot of work on calming my nervous system, moving from a fear response, journalling, meditation, relaxation, somatic tracking.

You have nothing to lose by trying it

GemmaPearl97 · 12/05/2023 11:13

doadeer · 12/05/2023 06:38

The first step for me was education. To understand why my body was in pain and how it's triggered in the mind. But to validate that all pain is real.

Then I did a lot of work on calming my nervous system, moving from a fear response, journalling, meditation, relaxation, somatic tracking.

You have nothing to lose by trying it

So happy for you! Did you have a set amount of time using the app each day ? Crazy that it could help that much & how quickly did you see progress ? Thanks so much

doadeer · 12/05/2023 11:30

It took me many months to make progress, it wasn't an instant fix.

I had small breakthrough moments, I did reiki and sound baths and I remember thr first time I was so relaxed that my pain disappeared temporarily it was miraculous I cried.

It didn't work every time. Sometimes I would cry with frustration.

I did meditations and education every day for a while. I also did gradiated exercise, gently doing the positions that caused me pain and doing mantras in my head constantly. I am safe. I am healthy. I am strong. I'm not afraid.

Slowly slowly I started to see progress and now I can do extreme back bends without pain (I do yoga).

I get flare ups if I'm under stress which is interesting

Thermals · 12/05/2023 14:02

Thank you so much. That really helps understand a bit about how it works. I'm so pleased it's made a difference.

Orangesandlemons77 · 12/05/2023 15:53

I've got neuralgia (nerve pain) from recurrent shingles episodes, feel a bit stuck between either being in pain, or with less pain due to painkillers but struggling with side effects (mainly extreme tiredness) so I am wondering if it might help me manage the pain better.

I was hoping it might pass with time but it doesn't seem to be unfortunately.

Glad to hear it has helped others.

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doadeer · 12/05/2023 16:06

It can still help you. The pain you experience might be your pain loop triggered and your mind is mistaking the signals

Antisocialfluffmonster · 13/05/2023 09:02

I’ve looked at it, but no one really explains what it is exactly, what you need to do and how it works. It seems to be just mind over matter?

I absolutely hate meditation, I just fall asleep, or get annoyed, especially guided ones, I’m just sitting thinking, if you shut up for a moment I’d actually be able to concentrate.

i really don’t want to pay for something that they won’t give a detailed explanation for. Very MLM like marketing

doadeer · 13/05/2023 11:06

It has different sections

Education podcasts about what pain is and why we feel it
How to tell if you have structural pain or neuroplastic pain
Interviews with people who have cured their chronic pain
Exercises to reduce pain
Meditations to reduce pain
Journalling exercises

Understanding why we experience pain and the role the nervous system plays in generating pain is really fundamental. It's not about mind over matter that's reductionist. I had structural pain as a result of pregnancy, this healed but my pain didn't go as I was in such a high stress state. Curable has saved my life. I have full time care of a disabled child, I desperately needed to be able to walk.

There is a free trial, if you don't like it just cancel

doadeer · 13/05/2023 11:28

There are also many many ways to meditate, sound baths are a form a meditation. Most people find the guided ones easier but if that's not you then you can do a different type. Most people find it hard to be still. When I was in pain it was impossible for me to relax

icclemunchy · 13/05/2023 11:36

I've not tried the app but from what others have said here it sounds like the living well with persistent pain course I did. Mine was run by the pain clinic at Chelsea and Westminster but I know other trusts do them.

It's a mix of education/mindfulness/graded exercise/cbt/peer sharing and support. But unlike when you do each seperatly it's all combined. It hasn't cured me (noone can!) but I have a much better quality of life and would highly recommend looking into it.

There used to be vids/info on the Chelsea and Westminster hospital website but I haven't looked recently to know if it's still there

FrownedUpon · 13/05/2023 11:42

It’s very good & helped me massively. You have to really embrace it though. If you’re sceptical & suspicious, it won’t work. My physical issues were very much rooted in emotions & life events and were my body’s way of distracting me.

Antisocialfluffmonster · 13/05/2023 11:58

icclemunchy · 13/05/2023 11:36

I've not tried the app but from what others have said here it sounds like the living well with persistent pain course I did. Mine was run by the pain clinic at Chelsea and Westminster but I know other trusts do them.

It's a mix of education/mindfulness/graded exercise/cbt/peer sharing and support. But unlike when you do each seperatly it's all combined. It hasn't cured me (noone can!) but I have a much better quality of life and would highly recommend looking into it.

There used to be vids/info on the Chelsea and Westminster hospital website but I haven't looked recently to know if it's still there

I did get given a cbt course along the same lines. I found it really difficult, the goal very much seemed like get you back to work, get you living the life you had before pain. I’ve never been out of work and I’ve not got a choice about continue to do things that hurt.

the things I cannot do, like put on shoes are more because my feet are so swollen shoes will not go on.

who knows.

Antisocialfluffmonster · 13/05/2023 12:04

FrownedUpon · 13/05/2023 11:42

It’s very good & helped me massively. You have to really embrace it though. If you’re sceptical & suspicious, it won’t work. My physical issues were very much rooted in emotions & life events and were my body’s way of distracting me.

I really don’t like things that blame you for not believing if they don’t work if I’m honest. My pain is caused by frequent dislocations, swelling, muscle spasms, falls and bruises

I can think positively about how much my feet hurt, and keep going regardless, but it’s not my mind making my feet and legs swell up like an elephant. I just don’t like the narrative that essentially I could change a mindset to make this go away.

I can meditate, I just don’t enjoy it or find it particularly useful. It just feels like I could have been doing something else with the time.

doadeer · 13/05/2023 12:44

If you are dislocating joints that's structural pain not neuroplastic pain

Orangesandlemons77 · 13/05/2023 12:45

I feel like I need to do or try something. I've got pain post shingles and it is nerve damage. Post herpetic neuralgia. also adhesions pain from many abdominal surgeries.

I'm on the highest dose they can give me of Pregabalin, I also have Co-codomol from before for the adhesions if bowel obstructions start which is really painful.

I'm unsure if this app would help with the pain but might give it a try for some ways to manage, find taking my tablets together is giving me some unhelpful side effects so would like to reduce it a bit.

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Orangesandlemons77 · 13/05/2023 13:20

Would mine be structural or neuroplastic I wonder. Does the app help both?

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Orangesandlemons77 · 13/05/2023 13:21

I don't like the feeling of taking meds is somehow bad or a weakness. Although they can have side effects they do really help with the pain.

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doadeer · 13/05/2023 17:24

My pain was structural but became neuroplastic as my pain signals became confused.

They talk about the signs of how to tell in the app or follow Alan Gordon on social media.