Just need a bit of a moan

[MedusasBadHairDay]

We moved house over the summer. Where we used to live was on a steep road, with other steep roads off it - so I found it incredibly painful to try and walk around, just getting to the end of my short road was agony for my hips, knees and back (I have hypermobility syndrome).

The new house is on a flat road, with other flat roads around it, so over the summer I've been able to do some really nice walks. Obviously there's was still some discomfort but I wasn't getting the sharp firey pain I was used to, and I was loving it, I felt almost normal for the first time in years.

But of course it's got colder now, and that's upset my joints. So I'm back to walking being agony, and I'm so depressed by it. Just the school run, 5-10 minutes walk, is pushing me to my limits, when just a couple of months ago I was doing 30 minute walks and actually enjoying myself.

I'm just so tired of completely normal activities being so damn hard.

[Akire]

Hi moan away! I think we don’t moan enough when life is so limited and because often others can’t see it there is zero sympathy or sympathy once and a “are you not used to it yet” sort feeling.

Are you normally affected by the cold weather? So spring should bring better days? There is something about the waking up knowing ground hog pain day that knocks it out of you

[MedusasBadHairDay]

I am yeah, the arrival of Spring has always felt like a huge relief even before the pain started (always struggled with SAD), so now it's an even bigger relief.

I always wonder if its possible to get used to chronic pain. You'd think so logically, because it becomes all you know, but somehow you just don't.

[Akire]

I think if anything it gets worse, yes you do get used to it but if you had a baby every day it’s still going bloody hurt. In my head I’m resentful where are the good days? Why isn’t this better? Come on universe you owe me a favour etc. Don’t think you accept this is it and never think about it again.

[picklemewalnuts]

I get it! It's a pig.

What about doing a different kind of exercise- I do Tai Chi at home, following videos/online classes. It's great for building strength, well being/mindfulness.

I also have a trampette o goon watching tv. It's been away all summer, but will be coming out soon!

[sweetkitty]

I have fibromyalgia and hate the cold weather it makes everything hurt. People don’t realise that my muscles tense up and become painful (also have Raynauds) the only relief I get is in my warm cosy bed). I’ve just bought this really warm duvet coat and am going to invest in some warm boots, hat scarf abs gloves so at least I’ll be lovely and warm which may help.

[RainbowZebraWarrior]

Totally hear you. Hypermobile EDS and Osteo here. This winter has just hit me like a brick. Tues night it was dark as DD had an after school club. I stood outside waiting for her and could have cried. I've had pain before. A lot. And I've coped. But I feel like I've dropped off a cliff face this winter pain wise. There's either really painful but sort of manageable days, or horrendously awful pain that the meds won't touch. My joints pop out too, which makes me scream. My Dad was trying to chat to me the other day. My Mum said she could see the pain on my face (and how I was basically hanging on my walking stick) and sure enough, my hip popped out and I screamed. I don't think my Dad really sees it. I guess that's because up until a couple of years ago I was still pretending to appear to be managing things ok.

Hugs