Chronic pain
Tmj.. migraines… botox?
Tarrarra · 02/11/2021 18:30
Just wondering if any tmj disorder sufferers have had Botox treatment and found it helpful?
After 3 years of chronic migraines and various medication I decided last week to give this a go and paid to have private treatment. I’m just wondering if it has helped anyone else and what your experience was?
I’ve got to go back in 2 weeks for a review but hopefully will know by then If it was successful?
Has anyone managed to get it on the nhs and if so how?
Thanks for any advice!
Woodlandarchitect · 06/01/2022 17:22
Hello! I have botox for migraines and at first I didn’t think it worked.
But since it’s worn off I have noticed my migraines are back and horrendous. And difficult to manage without Topamax.
So I’m off to get Botox again! Because Topamax is not agreeing with me at all and I’m terribly ill with it all.
My botox lasted for about 4 months but I think I had baby botox.
Ollyanddahlia · 22/06/2022 22:24
Fellow TMD sufferer here. 3 years and counting.
I've had the botox treatment, I'm under the care of oral surgery and they offered it to me after other treatments (physio, mouth guard, baclofen etc) didn't work.
At the time I didn't think it had done much but when it wore off I realised that actually it had helped quite a bit. I had 10ml which is apparently the highest amount you can have.
I'm due to have it again next month (I can only have two lots on the NHS) then I think it'll be a referral to a neurologist or a pain clinic as I'm quickly exhausting all options with them😔
wingliner · 07/07/2022 00:50
I was originally diagnosed with TMJ/TMD and nothing they gave me worked. I now have had a different consultant he has diagnosed me with Trigeminal Neuralgia - I have medications to stop the nerve pain and it has worked wonders. Can I ask where exactly the pain is?
wingliner · 07/07/2022 18:30
@Starrr123
It doesn't make me feel weird no, shod it? Do u know others who are on it and feel weird?
Def feel better on it.
Eating is easier.
Talking is a lot easier.
I am wondering when they look at my MRI when I finally get it down whether they will be able to tell me what caused it?
Have you heard that stress makes ir worse?
sweetkitty · 24/08/2022 00:39
I paid privately to see a consultant maxi facial specialist last November for severe TMJ pain. He said he wouldn’t recommend Botox as it wouldn’t work! I also have chronic migraines and am on topiramate/topamax. I have fibromyalgia and grind my teeth, he prescribed a mouthguard but that hurts my teeth and is so sore. My whole head/neck and shoulders ache constantly I’ve had to up my dihydrocodeine to 6 a day just to cope.
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