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Article - Fibromyalgia may be a condition of the immune system not the brain – study

14 replies

AlexTheLittleCat · 06/07/2021 21:47

Fibromyalgia may be a condition of the immune system not the brain – study

This is interesting for anyone with fibromyalgia/ME/CFS, it's linking the conditions as having a similar autoimmune cause.

OP posts:

Heyyeahyouwiththesadface · 06/07/2021 22:00

It’s not all in our heads!


Akire · 07/07/2021 10:13

That does sounds promising although just one study and up to 1 in 20 in the world!!!! You think financially it be worth it to get treatment for but guess pain killers make more money.

I suspect I have it but because of other conditions when I talk about all over body pain it just gets ignored. What a suprise.


ShirleyDab · 07/07/2021 10:31

This ties in with this recent article about an experimental drug
being trialled in Germany where it completely relieved symptoms similar to fibromyalgia symptoms that people with long covid suffer from:

'They then realised the BC 007 drug could also be of use in fighting off long Covid because it neutralises auto-antibodies, which attack the body and are common in coronavirus survivors plagued with persistent symptoms.

The unidentified man's lasting symptoms — fatigue, loss of taste and concentration problems — all improved rapidly.'

Fingers crossed something comes from this to end this misery soon.

Link to article.


TheDrsDocMartens · 07/07/2021 10:47

Could be a game changer though.


Akire · 07/07/2021 11:20

Defo I’m up for being stabbed with anything in a trial. Bring it on!


Grainjar · 07/07/2021 21:51

I hope they find a cure soon.


GiantToadstool · 07/07/2021 21:52

I have ME/cfs that has got worse since ive had covid. I would try this!


Grimbelina · 07/07/2021 21:55

I think there could be an auto-immune small fibre neuropathy which links ME/CFS, fibromyalgia and a few other things including POTS.... which can also be related to EDS and connective tissue disorders in some people, so this research makes sense to me.


TheFormidableMrsC · 07/07/2021 22:02

I've got a very lovely friend who has had Fibromyalgia for many years. I don't know how she copes. I always thought it was an auto-immune issue purely because of all the other auto-immune issues that she has that seem to have branched from the fibro. It can't be a coincidence that it's all related. Further, the terrifying level of medication she is prescribed makes no sense to me. I honestly don't know how she is still standing. What a bloody insult to tell somebody it's in their head. I am in awe of anybody who copes with this horrific condition. Let's hope there is some good news in the pipeline.


MarkRuffaloCrumble · 07/07/2021 22:09

I always thought fibro was a diagnosis of “we don’t know what else it is, so we’ll call it this” but like MrsC most people I know who suffer from it also have thyroid disease, EDS etc so this doesn’t come as a surprise to me at all.

What would come as a surprise is if this wonderful discovery makes it down the hierarchy to those of us suffering with poorly treated autoimmune conditions half our lives. More likely we’ll all be ignored as usually and it will only be used to help those with long covid because more of them are men


TheDrsDocMartens · 07/07/2021 22:58

EDS/Fibro here too.


Thekormachameleon · 07/07/2021 23:13

I'm surprised it's taken this long to investigate the link given the huge, huge percentage of fibromyalgia patients who also have other auto immune conditions


BigGreen · 30/07/2021 08:18

It's interesting because (very small) trials show benefit to strength training for fibro sufferers and also oxygen therapy which both help the immune system to become more effective.

Thanks for the link to the German study.


W3STY17 · 30/07/2021 23:46

Really hope they find a cure. I have Fibro/POTS & it's so debilitating 😩

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