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Chronic pain

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Unhelpful comments

54 replies

RainbowZebraWarrior · 08/06/2021 21:48

Hi all. No matter what your issue, nobody experiences your pain.
I have hypermobile EDS, Osteoarthritis, PoTS, MCAS and other issues. My family seem to be sick to death of me 'going on about it' so I've stopped as per their requests. I've also noticed on some threads that there are replies stating "I still work 60 hours a week, refuse to let it beat me" Yes, I've done that for 40 years and am now utterly broken. Literally from being superwoman to disabled in the blink of an eye. I am sick of whining, but also sick of being dismissed. I'm so thankful for the new chronic pain board. And I so want to be positive, but just needed to vent today and also reach out to those who feel lost. Huge hugs to you all.

OP posts:
Akire · 09/08/2021 08:01

I went to GP with hip and finger joint pain. She looked at me dead straight face and said you don’t get arthritis in your fingers! I was so shocked I should have said er really yes you can!!

Stevie6 · 09/08/2021 11:06

I have really bad pain in my hands, my fingers are getting wonky and twisted, had scans and X-rays, blood tests and nothing shows up, so they put it down to my Fibro, but I think they're wrong. But as a lot of you will know once you've been diagnosed with something like Fibro then it's responsible for everything 🤬

HerRoyalRisesAgain · 09/08/2021 11:12

Stevie6 I have arthritis in my spine that doesnt show on xrays, non radiographic. Could it be something similar to that thats happening?

Stevie6 · 09/08/2021 11:18

@HerRoyalRisesAgain I genuinely have no idea, but i honestly don't believe it's my Fibro causing it. It's taken over 11 years of pain and DRs visits to get the Fibro diagnosis so not holding my breath for getting answers any time soon unfortunately

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