I have had pain and fatigue for two years, thought it was joints but GP thinks its muscular and nerve now. After I had covid a few months ago, all my symptoms got dramatically worse two months later. I get so tired everythings blurry. My sleep is never restorative, i wake a lot. My fit bit shows low HRV and heart rate above resting during sleep. I also had an early meno which is linked to low hrv. Excerise does raise my HRV to a better level but it's hard to do it with all the pain and exhaustion
I have been losing a lot a strength in my right arm - it's really scaring me now. My arm tires so fast just emptying the dryer. I have pain when walking. Wake in pain in my elbows and hips. Im tired all the time.
Tried to go out geocaching with my kids last week - had to keep resting but even so, 800m walk wrecked me. (Usually 250 meters and rest, and 250 back is max i can manage these days) I had to get back to the car and was in tremendous pain - upper chest, neck, upper back, head,so bad that evening and sunday. Out of hours sent me to a and e. Ecg, bloods and chest x ray were all clear so they assumed it to do with the ongoing pain and weakness.
Its several days later and pain finally subsiding, exhsuation still intense.
I have a neurology referal now - looking to be mid July.
I'm so scared. Im worried its M.S. and i have nerve issues that could point to that but i googled last night and now ive read about ALS and im terrified. I think because of the nerve issue too, it points away from ALS but im terrified either way.
I have 4 kids, left an abusive relationship, have PTSD. 2 years of family court hell and the kids live with me. Theres court ordered overnights.
I have no family, I am a single mum and I am terrified. Im just so exhausted and so scared for whats wrong with me. Scared ill lose my kids if i have a condition that limits me. Theyre my life, I can't go on without them.
I just need to talk to someone. Need to hear about neurology appintments and outcomes, need reassurance that probably only the neurologist could give me. I just am so, so scared.
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Scared about neurologist appointment
LookingGlassRuby · 27/05/2021 12:06
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