My 7yo DS has Duchenne Muscular Dystrophy, it's an incurable muscle-wasting condition. Between the ages of 8-12 he'll lose the ability to walk, and during his teens he will lose the use of his arms due to his muscles wasting and becoming too weak. He'll become dependent on a ventilator and will die from heart or respitory failure, probably during his early 20's. He has 3 younger sisters ranging from 9 months to 3.5 years.
We've decided that as he won't get as many Christmases as most people, plus with everything else he has to go through that he deserves an extra Christmas each year. It may be a bit bonkers but on 15th July we'll be celebrating Christmas, Aussie style (I can't face cooking turkey and all the trimming in our kitchen/sauna in July, so BBQ it is!). We'll be having presents, Christmas carols, our family tradition Xmas eve buffet and even decorating the Xmas tree. I've even asked people to send us Christmas cards.
So I now have 3 weeks to plan and countdown to our bonus Aussie Christmas!
From present ideas to party food, find all your Christmas inspiration here.
Christmas
Celebrating Christmas in July for my disabled son
JustSeven · 24/06/2015 23:54
Awwwww just read this today. How lovely, even though I know there's a sad reason behind it 
Please update and tell us all about your bonus Christmas?
Sorry! I've been super busy doing local press interviews, meetings and other trust stuff as we have our first event this weekend.
We had a lovely relaxed family day. We initially said one present each but some very kind people sent extra presents which was lovely. DS had several Lego kits which he was really pleased with. One lovely person even gave gifts to me and DH, champneys products and vintage port!
The weather was just about ok, we had a great BBQ and strawberry flan for afters, along with plenty of sweets and chocolate!
I'd like to say a big thank you to those who sent us cards, gifts and crackers. It really does mean so much to me that random people wanted to help and support us x
To comment on this thread you need to create a Mumsnet account.