Hi all,
I posted a few weeks ago about concern over my 9 week old DS. He had a bad UTI at 6 weeks, problems feeding and very floppy.
Since then he has been put on ranitadine, domperidone and onto Nutramigen milk but is still a nightmare to feed. He will either faff and smile and not be interested at all or will take a few mouthfuls and scream and scream. We are currently only getting around 60 or 70 ml into him 5/6 times in every 24 hours and when weighed yesterday has lost weight after not gaining for last 3 weeks.
We saw consultant yesterday who is referring us to a neurologist as he is still very floppy (although I have noticed a change and he is attempting to hold his head up etc) and also has 3 marks on his right hand side - I just thought these were birth marks but apparently they can indicate a neurological problem. We are also seeing a specialist in feeding problems but not sure when this will be.
To say we are worried is an understatement!! I feel everyday is an uphill battle to get him to feed, I rarely go out as feeding is so stressful so hate doing it in public. I'm worrying and imagining all sorts and not enjoying DS at all - believe me I love him hugely but I feel a neurotic mess. If he sleeps too much I worry, too little I worry. I wake up numerous times a night to check him and then just lie there watching him incase something happens. I'm so tired I am not being a good mother to my DS1, I don't have the energy to play with him how I should be doing. I feel like I'm failing both my beautiful boys and our lives are in limbo whilst we wait on hospital visits and tests. I'm in tears at some point everyday and its just not fair on my children, I want to be strong and positive but its so hard when I'm spending so many hours a day feeding DS2 and dealing with him crying in pain.
My DH is great and does loads but he works long hours and is away 2/3 nights a week.
I don't really know what I expect in replies, I just needed a rant I think. But if anyone has experienced this or has any ideas please let me know xx