Just back from GOSH

[Katymac]

I am so tired

It is definitely psychological

So I wasted everyone's time & we are no further down the line towards a 'cure'

poor DD

why time wasted

Because I had already been told it was psychological & I refused to believe it

even if it is psychological you have wasted no one's time.
any treatment plans?

Not time wasted then if it has given you a second opinion as idea of treatment or timescales

At least you now know for sure and can concentrate on one thing and getting her better. Good luck

No - just carry on seeing the psychologist

GOSH don't want to see us again (fair enough)

No timescales

Definitely not time wasted.

Your poor DD

Have they got anything planned of how they can help her?

No you havent you have just double checked a diagnosis,if you had written a post saying just back from GOSH,,,,,,dds problem isnt psychological its mumsnetitus or some other random disease,we wouldnt have congratulated you on proving the diagnosis wrong- its not a winning game all you want is for DD is to be well.

It's of vital importance that you are absolutely certain whether it's psychological or not, because it's going to be a long road either way and you don't want to be six months in thinking "perhaps they've had the wrong diagnosis all along". So taking the time to get the second opinion is emphatically not a waste.

I guess

It just feel so

What everybody else has said. You needed to do this so you can now concentrate on helping your dd without being torn in two by doubts.

I spent several years trying to help my dd in ways I did not really believe in and it was hell for both of us.

This was the right thing to do.

Had they any suggestions about the actual treatment?

Knowing the diagnosis is right is as important as getting the right diagnosis.
I would have done exactly the same as you.

No - just to keep seeing the psychologist (I typed that as psychologit as first )

It just feels so .......scary? Neverending? Hopeless?

it is a big deal, no-one wants to accept that their child is feeling so battered by life that this has happened to them.

I will share dd1's angst with you sometime, you are not alone!

If nothing else it has put your mind at rest and you know you have done everything possible. Definately the right decision!

Good luck with everything

Can I ask a really really stupid question, are they saying she is choosing not to see ??

Apols have been lurking for a while, but not always keeping up.

scary? Neverending? Hopeless? - yeah those & pointless & useless

No they are saying she has been upset by something so much that the bit of her brain that 'sees' has decided (all by it'self) to shut down

Apparently it happens to teen age girls a lot (funny that only one other on MN that we can find - so it can't be that common) often after a 'trauma'

Katy, do you have more confidence now that the diagnosis is right? If so, then it was worth and nobody's time has been wasted. The very worst thing is those niggling doubts which you would still have, had you not attended GOSH. And if you were in any doubt, your dd would have picked up on it and her recovery would probably have been slower.
I have occasionally referred people for a second opinion, not because I felt the original ophthalmologist was wrong but because the patient needed reassurance that the treatment they were receiving was correct or in some cases that there really was nothing further that could be done for them. There really is nothing like peace of mind to aid recovery.

Oh goodness me, hope things improve sooner rather later.

So she had brain scan done?

It's just her body's way of saying that on an emotional level she is very stressed surely this is better than her appearing okay and going off the rails at 15?

don't be hard on yourself, she's been through alot and ultimately she'll be okay again it's just going to take time.

In retrospect a brain tumour would have been a worse result!

Bug hugs.

It would have been far easier if they'd been able to say "Ah yes, this is the little-known Shatner's Neuropathic Syndrome. It's very rare and caused by this very complicated cellular thingy, but will respond well to a three-month course of this drug. Or even, in some ways, if they'd said that it was Shatner's Neuropathic Syndrome and it was irreversible. You'd have known where you were. You could have made plans.

Instead you are left with conversion disorder, which is of uncertain duration if it doesn't resolve itself in the first few days or weeks and doesn't have clear proven evidence-based treatment programs. You're left with "we don't know how long this will last, or how to fix it, but logically this course of treatment sounds as though it ought to help so that's what we'll do"

No wonder it feels so overwhelming/dispiriting/confusing/hopeless/insert relevant section of thesaurus here.

'Instead you are left with conversion disorder, which is of uncertain duration if it doesn't resolve itself in the first few days or weeks and doesn't have clear proven evidence-based treatment programs. You're left with "we don't know how long this will last, or how to fix it, but logically this course of treatment sounds as though it ought to help so that's what we'll do"'

That is it exactly