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Original poster

dd's hip pain has been diagnosed

27 replies

piratecat · 02/06/2010 20:27

Hi there. Saw a physio, and an orthopedic expert today.

dd has Tight iliotibial band syndrome, or snappinghip syndrome.

Means her muscle, tendons and ligaments are all doing stupid conflicting things between her hip bone down to her knee.

Not sure of cause. prognosis is not certain, due to growth, buthopefully will go one day. She needs physio, and painkillers. We are to be overseen by this dr and regular visits to physio. I have the physio's direct number for supprt and advice.

The tendons over her hip are most likeliy catching somewhere, and the best way to treat it is trying to stretch her leg with excercise. if the sever pain continues to come then they will look into cortisone injections for pain relief.

this sort of thing

I am so relieved to have soemthing to work wiht, The DR was fantastic, time short, but knew his stuff, which is al one can hope for.

OP posts:
jkklpu · 02/06/2010 20:31

Great to have the relief of a diagnosis even if there's no certainty about how it will/won't develop. How old is your DD? Old enough to understand that this is good news and that she'll be in less pain before, I hope.

I know it's tough when there's something wrong with a dc and you can't get to the bottom of it. Currently in Kafkaesque choose-and-book hell trying to get one of mine in for 1st consult with consultant.

SanctimoniousTeetotalPrig · 02/06/2010 20:37

Oh what a relief. Tis SOH btw.

My dh has iliotibial band friction syndrome caused by a tight IT band. He has had cortisone injections in his hip for it. They are not pleasant but do amazing things. He is v active, a triathlete and works in a v physical job. You can stretch it which works wonders and acutally, even if it's very, very severe, there are surgical options down the line (rarely needed though, I just mention it so you know there are more options beyond living with it if normal measures don't work). It might change on its own as she grows. Decent physio and keeping up with her exercises are a MUST.

And as an aside, if she ever needs a drugs test (for employment reasons for example), if she takes a NSAID like ibuprofen while having cortisone injections it produces false positives for cannabis.

DH is a copper and when he had his obligatory drugs test on joining he was told he'd been smoking pot. Thankfully, further tests showed it was ibuprofen and cortisone taken at the same time causing the dodgy result.

Might never be relevant to you but wish I'd known! We were in shock.

How is she pain wise now?

PixieOnaLeaf · 02/06/2010 20:38

This reply has been deleted

Message withdrawn

SanctimoniousTeetotalPrig · 02/06/2010 20:39

And the metabolites can stay in your hair for months or years btw. So if she ever has a hair drugs test, she would be best off declaring it first!

Monty100 · 02/06/2010 20:41

Pirate - I'm really relieved for you. Hug to dd.

Original poster
piratecat · 02/06/2010 22:15

thanks ladies.

soh (waves)!

Not knowing how long this will go on is a bitch, yet knowing 'something' is really great.

This iliotibial band thing, it's od that it's happening to dd, as i have read up it's more prominent in runners, gymnasts, ballet dancers. yet they also said something may well have started it off, like in unjury we didn't realsie, iyswim. it IS her 'dodgy' hip tho, as i have always called it. The DR was staright up the diagnosis, as soonas i said she's been complaining the last 2 yrs very sporadically of her 'bone clicking'. I am so glad i told him that info. When it has 'click'ed' it's been agony but short lived, whilst she's 'clcik it back'

Of course it's now gone further than that, Yet glad it's not actually her hip bone coming out or anything, rather it's ligaments over the bone.

OP posts:
Elgoogreven · 02/06/2010 22:19

hi pc,
how old is your dd?

mumbar · 02/06/2010 22:22

I have a similar thing told the tendons/ muscles on the side of my hip not quite in right place (diagnosed by spanish speaking DR) so hip done kinda pops out and in if i lean on it funnily.

Did excercises and now don't really notice it so hopefully dd will find it works too

best of luck

Original poster
piratecat · 02/06/2010 22:38

dd has had about a month of excruciating pain episodes, and has been to a+e twice and in hospital for 4 days, all in a month. poor kid. She is 8.

OP posts:
cory · 02/06/2010 22:40

So glad you finally got somewhere!!!

ClimberChick · 02/06/2010 22:47

I have/had this. Before the exercises, walking up/down anything was extremely painful, but it didn't take too long before it was manageable everyday. Longer until exercising was alright again. I find when I up my exercise regime, then I have to start doing the exercises again. Hopefully now you've got a diagnosis, you'll see a improvement quickly, hth

Original poster
piratecat · 02/06/2010 22:53

can you beleive she is actually asleep, ok in my bed, without having had a big flare up of pain like she normally has in bed? This will be the first time in 12 days.

we put some ice/cold t-towel on it, I let 'her' do it for a few mins earlier. physio suggested we try it when pain wasn't acute. dosed up on ibuprofen.

OP posts:
Elgoogreven · 02/06/2010 23:07

piratecat,
nevergoogle here. ask your physio if she knows anything about 'cupping' massage. i've been told it is great for ITB massage. it involves a suction cup .chinese medicine uses a flame to suction the air out of the cup, but you can get ones that kind of resemble a breast pump to create suction.
you put massage oil on the skin, put the suction cup on and it creates a suction for massage. then run the cups around the skin. very useful for lifting the itb gently outwards (something difficult to do manually).
I've only been told about it and had a practise of a set of cups, but wonder if it might be useful.
i'd be interested to know how you get on.

ShowOfHands · 02/06/2010 23:48

DH is home from work. He said to tell you that before his diagnosis it was very painful, excruciating to walk but quite quickly with the right treatment it improved massively. He also stressed that she must do the exercises given to her.

He also said to be prepared for some of the physio/massage being painful. It's unavoidable.

I'm just relieved they've diagnosed at last.

Hope you're okay.

Aitch · 02/06/2010 23:52

well done for pushing for her, piratecat, i'm glad you got somewhere.

Original poster
piratecat · 03/06/2010 08:47

gosh thanks ladies. I can't tell you the relief to have something to talk about at last.

it's been stresssful. I was going to do the stretch this morning, one we have been shown but have decided to let her warm up a bit this morning first.

soh sanctimonious, did your dh ever have the pains in the evening, likee dd does, when she lies down?

DOc said this might be on going becuase of growth spurts too, which is understandable. The muscles, tendons ligs not keeping up. Si glad the doc immediately picked up on it when i told him of dd complaining for 2 yrs or so about her bone clicking. I am repeating myself, but I do hope this thread gets picked up in a search one day if anyone else goes thru this.

OP posts:
SparkleRainbow · 03/06/2010 08:55

It is such good news that you have a diagnosis for her. Sounds like the physio and ortho were on the ball.

It may take time to sort out, but you have something to work with now. Well done you.

I hope you all get some sleep over the next few days!

Original poster
piratecat · 03/06/2010 08:59

thankyou sparkle. it means alot to me to get these replies.

OP posts:
liath · 03/06/2010 08:59

Excellent, am so glad you've got a diagnosis at last after all that stress.

TheFoosa · 03/06/2010 09:03

have been following, glad there has been some outcome

Original poster
piratecat · 03/06/2010 09:15

thanks.

Its great to be able to google. Sounds very painful, as it's too tight over the hip. thats why the 'snapping' thing started. Or in dd's terms 'bone clickin', which isn't bad seeing as she was about 6 when this began.

I have read that becuase she toes in or has a pronounced fot on her right side, it causes an imbalance. her legs measure the same, which is one thing they checked first, but the righ side doesn't function as well in walking, wel obv not in the finer movements.

as i always said to them 'her dodgy hip'!

OP posts:
ClimberChick · 03/06/2010 12:33

Second the make sure you keep doing the exercises, even when everything does get back to normal/OK

ShowOfHands · 03/06/2010 15:07

To this day dh has problems if he sleeps in a different bed. As soon as he lies down in a bed other than ours, his knee and hip hurt. And in a morning he can't weight bear. We have a very firm mattress which helps.

He also has orthotics in his shoes as the way he walks compensates for the tightness of the band. The orthotics force him to use his feet better.

Original poster
piratecat · 03/06/2010 18:50

hi soh, have emailed you.

dd used to have shoes to straighten her feet, but the ortho guy actually said it was up to me wether she did or not. Yes another helpful situation i was put in 2 yrs back.

She toes in on the right, and had flat feet for 2-3 yrs when tiny.

I guess it's going to be a waiting game now.
x

OP posts:
saggarmakersbottomknocker · 04/06/2010 09:08

Glad youhave a dx piratecat

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