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Hiow safe is our food and blood supply?

23 replies

justiceforandy · 02/06/2010 16:37

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My name is Christine Lord and I lost my only son to vCJD the human form of mad cows disease aged just 24 years old in 2007. I buried my only son just four days before Christmas at the same church I use to watch his nativity plays.

I want to inform mums on this site that vCJD has not gone away and continues to kill predominately young people in their teens and twenties on a regular basis. The youngest victims have been just twelve years of age. Many cases of vCJD are not being recorded or noted on official statistics, this falsely reassures the public that the disease has gone away.

There has been a previous discussion on BSE/vCJD regarding Kenneth Clarkes appointment as Lord Chancellor. I would also like to answer some of those comments too
Kenneth Clarke was health minister when the most infectious material from BSE cattle were being pumped into commercially prepared baby food, (cow and gate have admitted this from 1983-1988 in their jars of baby food, see website www.justiceforandy.com)
This lethal material brains,spinal cord was also extensively used in school meals, university food, and armed forces meals as well as bovine material from bse cows
Used in the manufacture of vaccines. ( these are named on the website) 2 million children in the UK were injected with vaccines sourced from cattle suffering from BSE.

Kenneth Clarkes deliberate decisions allowed this infectious material free reign for years in the human food and medicine chain. WHAT HAS THIS TO DO WITH MUMS IN 2010 ? Well you may well have been a child of the 1980s and 1990s who received and ingested this material. 129 children in the Uk many under the ages of 9 years old have lost a young mum or dad to vCJD. Young mothers in the death throes of Vcjd have given birth to several children, one of those infants born totally disabled is showing all the symptoms of vCJD. I am in constant contact with this family and the grandmother who cares for this child. This young girl has never walked, talked, eaten and is severely brain damaged. As her gran said ? Mother to child transmission vCJD has taken place.?
One of the current victims of Vcjd Dean Burrell from Kings Lynn is just 25 and is Dad to Charlie aged 18months and Chole aged 4. Dean played football and was a healthy young guy and was married in August 2009. He is now totally disabled, unable to move or feed himself?. dying of vCJD and in a hospice needing 24/7 care. BSE still affects UK herds and our blood supply is not screened for Vcjd.

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Kenneth Clarke, John Gummer and many ministers and officials whose duty of care was to protect the UK public during the 1980s and 1990s not only failed to do so but actively encouraged the use of MRM the most infectious bse material in foods that would feed our most vulnerable. VCJD has incubation periods of between 5 and 50 years so millions of us have been exposed to BSE and who knows now many more of us may die. Everyone over the age of 13 has eaten at least 50 BSE infected meals, veggies and strict Hindus have also died of Vcjd.
Some of us may never develop the disease but can carry it ?silently? and pass it onwards through blood and medical procedures. One blood donor who is alive and well has been found to have given blood to two people who have since developed vCJD. Professor John Collinge world expert vCJD told me in an one to one interview with BBC1 that ?Probably one in a thousand of the Uk population is carrying vCJD?.

This is the ticking health timebomb that Kenneth Clarke, John Gummer and those I name and shame have left us mums and the UK population. Surely this is criminal?
I know through my investigations that important evidence was withheld during the Phillips BSE inquiry and talking and in recorded interviews high ranking scientists who gave evidence told me witnesses were rehearsed and the coverup continues.
I have set up a campaign called www.justiceforandy.com to get justice for my son and all victims of vCJD to achieve accountability, responsibility for hundreds of unlawful deaths due to vCJD. I also want to prevent future and further deaths. Please log on and read the profiles of the ministers involved, if you click on to the documentarys page of the website you can watch the bbc1 prorgamme I helped to produce and film about my sons dying day, my confrontation with John Gummer and explanations of why Vcjd is a significant threat to all our families in 2010.
I urge members of mumsnet to join the campaign and the 7 million plus people who have contacted us, help us towards transparency openness and justice,help us to keep our families safe and the blood and food supply free of vCJD. On May 4th
we held a protest outside Downing Street which was covered by the media including BBC, radio and European television, many concerned mums and their children attended this demonstration. Dean Burrells family and many who have lost loveds ones to Vcjd also came along and talked about their experiences.

I am a freelance journalist, have no financial, political or corporate agenda the campaign is self funding and runs with the help of volunteers and members of the publics support?
?.I am also a mum who faces heartbreak every single day ?knowing my son needn?t have died?..I have a daughter Emma aged 20?who was just 16 when she watched her beloved older brother die horrifically of vCJD.
Anyone of you reading this could be me?..walking in my shoes?..my son could have been your family member?..so please don?t believe the government spin that ?vcjd is a rare disease and has gone away??one death is one death too many from a preventable disease? hundreds have died and hundreds more will die?(.Professor Hugh Pennigton Newsnight 17th December 2009)
And millions of us have been exposed to BSE?.

My Andrew was fussy with his food hardly ate meat, never smoked and was a wonderful young man with the world at his feet. He worked in London and had a blossoming career as a producer/ researcher in the media. In March 2007 he produced live radio programmes for a national station by December he was blind, deaf, quadriplegic unable to swallow or recognise his family. He ate school meals, had a few jars of commercially produced baby food, was vaccinated?..whilst Kenneth Clarke and John Gummer were reassuring me and the public that ?beef was safe? and that ?bse posed no threat to human health?. Behind closed doors Clarke, Gummer and those I name on the website were repeatedly warned of the lethal risks that BSE posed for human health. But their political careers and government policy came before my sons life and future and also every ones health and well being who is reading this on mumsnet.
When my beautiful boy lay dying he said to me ?Mum find out who did this
to me and expose them? and always thinking of others he also said ? This must never happen again?, I continue to honour those promises I gave my beloved boy.
Help me to keep you and your families safe?please log on and send me your comments, information and thoughts. ..help me to get justice for all victims of Vcjd all those young people and individuals who have been unlawfully killed by a man made UK manufactured disease.
With your support, a mothers love, a journalists nose for the truth and people power I am sure I will get justice for my Andy?and all those young people and innocent victims whose lives were wrecked and futures stolen??
Thank you Chrisitne x [email protected]

OP posts:
sarah293 · 02/06/2010 16:43

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ohmeohmy · 02/06/2010 17:13

Very interesting and equally frightening. Also very sorry about your son and the others living with this disease.

Beaaware · 03/06/2010 11:29

I have been active on mumsnet now for a while trying to get the message across to mums about Mad Cows Disease (vCJD) when I put vCJD in the search engine on this website I was horrified to read that a young mother had been given a blood transfusion and now she is unable to donate blood, organs, breast milk or tissues all because she may have been exposed to vCJD through the donated blood on the NHS. It is scandalous that something which is so lethal that was in the news 25 years ago continues to claim lives, why are we not told the risks of contaminated blood supplies in the UK? Why do we not test cows under 48 months for BSE?
The suffering and loss of so many people from vCJD is tragic, a manmade infection from simply eating contaminated meat or being given a childhood vaccination, a medical procedure, a blood transfusion. What worries me is that you never read about these deaths in the newspapers anymore so people think Mad Cows Disease does'nt exist these days, sadly it does.
www.justiceforandy.com

AMumInScotland · 03/06/2010 11:45

I am sure that we are all very sympathetic to anyone who has lost a loved one to this disease. However, I do not think that repeatedly starting threads on this same topic is the best way to go about publicising your cause.

Between you, you have started several threads on this, and there have been some interesting discussions. Why not leave it at that for now?

justiceforandy · 03/06/2010 12:57

Hi mums thanks so much for your feedback and comments, it means a great deal to me...and would have made my son smile that people care. Mum in scotland....I understand your comments....but do you know that youself and your family ( over 13s) are seen as 'asymptomatic' for vcjd and that no one who has lived worked or visited the UK since 1980 can give blood in any other country..we are all seen as 'at risk' of developing vcjd at any time. Everyone in the UK over 13 is seen as a health hazard to blood transfusion services across the world. My friend was in newyork during 9/11 and wanted to give blood but becasue she was from the UK and had lived here from 1980 she was refused as her blood was seen as hazardous for vcjd.

There have been clusters of victims in scotland, one a mum who was nursing her 10 month old baby as she lay dying of vcjd, this mum died leaving 3 boys under the age of 7.Also check out grant goodwin from glasgow BBC news.
I wish you and your family health and happiness and have posted this thread on mumsnet to raisse awareness and give information. When my andrew lay dying his friends average age 19 didnt know what mad cows disease was..as many were babies or not even born when it was on TV. The public think it has gone away...just a few weeks ago a lad of 21 yard old billy smith died in london of vcjd he was born in 1989. Unfotunatsely for me and many mums across the uk, europe and usa who have nursed or are currently nursing their child as they die of vcjd...this is very current and topical and could well affect any mum on this site in the future. May I ask a little bit more about you and your background? The terrbile irony about this is that my Andrew hardly ate meat was a total health junky and took good care of what went into his body...I was told what killed him he probaly ingested when he was about 10 years old...
vcjd has incubation periods of between 5 and 50 years. Thanks for mumsnet support...and the mum in scotlands comments ... debate is important and knowledge essential to keep our families safe...during the 1980s and 1990d families were not given an informed choice if i had known what was in baby food school meals and vaccines then my son would never have had them...and he may well be alive today.....

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sarah293 · 03/06/2010 15:10

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Beaaware · 03/06/2010 17:54

BSE in cows still worries me, I have read on the Food Standards Agency website www.food.gov.uk (put BSE in search engine) they currently do not test cows under 30 months for BSE this is going to change to 48 months, but the risk of BSE in the food chain is very small apparently. I would like the risk to be nil, so here we are still being exposed to Mad Cows Disease be it in small quantities.

AMumInScotland · 04/06/2010 09:46

You both seem to be genuine people who want to raise awareness, and I can understand that. But I think you have to understand that your current approach is not the best way to influence opinion.

Approach A - go into a room full of strangers, stand up on a chair and make a speech.

Approach B - go into a room and sit with people you know a little. Chat about last night's episode of Doctor Who, wonder out loud whether to have the chocolate sponge or the cheesecake, moan about how the politicians just aren't listening and ask whether people think you should do X or Y to get their attention, compliment someone on their new hairstyle and sympathise about the schools admissions process.

We've had a lot of politicians and campaigners on because of the recent election, and they almost always choose Approach A - they treat us like an audience waiting to be told what to do/think/believe, and then get annoyed and frustrated when we just don't pay enough attention to someting they consider of the utmost importance.

We're not an audience - we're people. You will influence us much more if we feel we know you as people and start to care about you and your campaign because we care about you. It will only be a slow trickle, but changes in attitude will always start that way. If you keep shouting, most people will just tune you out. But if you chat, people will gradually hear what you're saying.

Those on MN who have taught me about an issue and influenced my opinion are people like Riven who chat about lots of things, but mention amongst it the frustrations of things like the upfront costs of adaptations in the Motability scheme and the dreadful provision of nappies to disabled children and adults. She isn't a campaigner, but I feel I "know" her a little, and she has increased my understanding of an issue which is important to her and others.

Beaaware · 04/06/2010 22:53

MumInScotland, it appears you really do not wish to read any of the threads about vCJD on mumsnet, I thought this was a free for all website where people can put their points of view under say "Campaigns/Politics/Health etc, if you do not like the tone of the threads you chooose to read then why comment? I don't understand your reasoning, I only comment on threads that I am concerned about I am certainly not going to undermine anyone elses freedom to speak on whatever subject they wish. Please do not read the threads by me or justiceforandy if you don't approve which you clearly don't.

AMumInScotland · 05/06/2010 17:01

Believe it or not, I was attempting to give you helpful advice. But feel free to feel offended if you'd rather.

You have started 6 threads about this in under 3 months. 3 of them had no replies, 1 only had replies (not from me) pointing out that it was getting a bit tedious. Only one of them has actually developed into anything like a discussion of the issue.

If you want to use a general forum like Mumsnet to raise awareness of your issue, you are going about it all wrong and will not get results. Up to you if you want to carry on with your current methods or not, but I honestly think you'd do better with more subtlety.

Beaaware · 05/06/2010 17:51

You have your opinion and that is fine, but you are not a moderator and you cannot control who puts threads on here about anything they please nor how many, whether it is the right way or not why does it matter, as far as I am concerned the whole point is to raise awareness of a serious health issue, I have no idea how many people have read the 6 threads you mention hopefully those who have are now aware of contaminated blood issues in the UK. Thanks for reading them anyway

AMumInScotland · 05/06/2010 17:55

Oh FFS do it your own way then.

FionaSH · 05/06/2010 21:46

So what's the recommendation please? I am very worried about this. Don't eat beef? Don't have transfusions? Is that it?? I wasn't allowed beef as a child because of BSE, but have eaten it since about the age of 18 (now 28). Foolishly believed that BSE had been eradicated. Foolish, I know.

Beaaware · 06/06/2010 17:44

Hi Fiona,
I am afraid it is a case of being self informed as our government does not want us to be aware of what is going on, there are some websites you could go on such as www.justiceforandy.com which is by far the most informative on the internet, also try the health protection agency www.hpa.org.uk and the food standard agency www.food.gov.uk. I also foolishly believed that BSE had been eradicated but if you put BSE in the search engine on the fsa website it advises that BSE is still in UK herds as recently as July 2009. I don't understand why all cows are not tested as it takes 4 - 6 years for infected cattle with BSE to show signs of the disease. It is very worrying.

Beaaware · 24/06/2010 12:27

Latest from the Department Of Health on the safety of our blood is as follows:

"We are unable to make any commitment regarding future policy on this issue (safety of UK blood supply) at this stage"

I guess this means that they have no plans to protect our health at this present time, so we will just have to accept that we continue to be at risk from the human form of mad cows disease from unscreened blood donors(vCJD)indefinitely.
Obviously not a serious health issue then!

Beaaware · 24/06/2010 12:38

Above quote is from DOH, Anne Milton MP who is the Parliamentary Under Secretary of State for Public Health, any concerned parents can contact Anne here:
Department Of Health
Richmond House
79 Whitehall
London
SW1A 2NS

if she gets a few more letters from us maybe she will take this issue more seriously, after all it is the DOH job to ensure that our health is protected.

catinthehat2 · 24/06/2010 12:52

Beeaware

AMuminScotland was right.

I've opened this thread, read very little of your huge opening post, read AMuminScotland's spot on advice and am about to go on to something else.

Broadcast mode is all very well but your audience has to be set to receive ot it doesn't work.

gorionine · 24/06/2010 13:01

I am very sorry you have lost a son.

I have been wondering a lot about blood transfusion. I am Swiss, have lived in England for about 15 years. I used to give blood back home. Once I was visiting my parents, my mum was goind to donate blood so I taggged along with her. I had to answer a questionaire and because I hade been in the UK during the "mad cow" outbrake they will not let me donate blood there anymore.

FiveGoMadInDorset · 24/06/2010 13:04
Biscuit
Beaaware · 24/06/2010 13:29

catinthehat2
I did not make the opening post please get your facts correct, there are others that post on this subject other than myself. I was just updating mumsnet with the latest info from the DOH, letter was dated 7th June 2010. Don't see anything wrong with informing people of the facts.

HurleySatOnMe · 24/06/2010 13:34

Ooo the stories I could tell you all to shit you up.
There's a lot of research goign on with regards to this Bea. When I had my tonsils out 3 years ago I had to sign a consent form to donate the little buggers to government research. Anonymous government research, because, as I was told, you wouldn't want to know the results, as there was no cure But they are expectign numbers to rise significantly from what I gathered. But you know what? If the damage has been done, it's been done. I'm sorry for your loss but tryign to scaremonger people achieves nothing.

AwesomeWellies · 24/06/2010 13:42

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Beaaware · 24/06/2010 14:16

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