coeliac disease?

[teta]

Hi i am looking for info.on kids with coeliac disease.I have a 4 year old ds with a distended stomach and almost permanant upset tummy who has always vomited a lot[but we thought he would eventually grow out of it].But he doesn't seem to be growing as fast as his friends and has a small frame even though he is always eating and should by rights be chubby.I don't know whether this could be caused by lactose intolerance[which my dh has] or any other problem.Can anyone please give me any advice?
Many thanks.

You need to go the the drs as if you start taking things out of tests will not be actuate. my daughter has a wheat and dairy intolerance which we worked out by trying different things she had a ceoliac test but before we took her off wheat. it would be awful to find taking him off wheat helped then you had to but him back on it to have the test.

And you would need to put him back on it for quite a while (up to 6 months I think). A paediatrician should be involved in investigating this.

And you would need to put him back on it for quite a while (up to 6 months I think). A paediatrician should be involved in investigating this.

I have two boys with Coeliac Disease diagnosed when they 3 and 5. My youngest had the most symptoms. Distended stomach, foul smelling wind and very soft not formed stools, pale face, black rings under eyes, not growing or putting weight on, small frame, tired, irritable etc etc.
Firstly please DO NOT cut anything out until tests have been carried out. Coeliac Disease is diagnosed with first a blood test followed by a biopsy.
You can develop lactose intolerance if you have Coeliac Disease but are eating gluten.

We saw the doctor then we were referred to a paediatric consultant who performed the blood test on my 3 year old (think the doctor can also do this). This came out strongly positive and as my niece also has coeliac disease our consultant didn't think the biopsy was necessary. We put the 3 year old on a gluten free diet and the improvement in just week was amazing. Now a year on he is like a different child.
We have both been tested since the children were diagnosed.
If you get a confirmed dignosis you can get gluten free food on prescription and have consultant care to monitor their progress.
Hope you can find out what the problem is.

Thank-you for that info.booner.I was reading wilikipedia link last night that someone posted- on coeliac disease and not all the symptoms fit.My ds poos a lot[5-6] times daily but not normally pale ones.He is also really active.- but has always been very demanding.I have 4 Dc and he is more work than the others put together - but I don't know whether that's his personality.He also vomits a lot - did your kids do this?.
Thank-you everybody else for your help

We only had vomiting a couple of times and since going gluten free he had gluten once by mistake and was vomiting. His stools were not really that pale but were acrid smelling.
He was active for a bit then tired on and off throughout the day.
My other son also tested positive and his only obvious symptom was pale with dark rings under his eyes no other symptoms to match with Coeliac Disease.
Another symptom that has gone is my youngest was unwilling to interact in new situations or even when visiting grandparents, wouldnt smile for a photo and was prone to meltdowns. Now he is very sociable.

That interesting as your last sentence almost describes my sons behaviour.But apparently he is very sociable when I am not around so maybe it is youngest child syndrome!.I have mentioned it to my childs nursery and they seem to think it might well be coeliac disease.However the fact that he has always vomited so much[ when he was a baby it used to be several times a day ] means that i cannot rule out some malformation of his digestive tract.The main problem is that because i have 4 dc and a DH who works abroard it will be very difficult to start him on the medical treadmill of tests.So for this reason I have been trying to turn a blind eye to the problem.Thank-you so much for the info.and i will ask the gp to refer him to a peadiatrician initially and then maybe a paediatric gastro. guy.

If it is Coeliacs you do want it spotted. Its not too much of a "medical treadmill" but does involve being very careful about what you eat.

teta - you sound like you have your hands full but to reassure you I certainly haven't found it a medical treadmill.
Trip to the GP to get referred to a consultant.
Blood test at the consultants (you can ask for anaesthetic cream to be put on before they take blood).
You may then need the biopsy but then if it's confirmed you see a dietician discuss the gluten free diet and then start the gluten free diet.
We then have had one follow up appointment with the consultant after a few months and then annually after that.

Thank-you Booner.I will make an appointment today as i need to sort it out before my DS4 starts school.What do i feed my kids if they can't eat noodles as this is their fave food!.But i guess i need to go one step at a time!.