I want someone to tell me what to do - I have too many options

[Katymac]

I am feeling very out of control & unsure about what to do with regard to DD not being able to see (which might or might not be psychological). Should I:

a) See GP about DD' sight & ask for:
i) a referral or a second opinion (who - Big local hospital or Moorfields)?
ii) a referral to an OT?
iii) something else?
b) wait until mid April & see current hospital again?
c) Speak to the CAMHS person to see what they think?
d) something else

My niece had an MRI scan done when she was 21mo. She was sedated to keep her still - it was necessary (as was the MRI).

Your DD should still have an MRI - I can't understand (apart from cost) why they haven't done one yet?

Just as an aside, has she banged her head at all recently? Is her stress causing major neck/shoulder tension? Does she have headaches as well?

What he said was that "the results from the tests she had had preclude it being anything other than a conversion disorder" but I wasn't in much of a state to ask for anything more

She doesn't have any other symptoms (that she has told me) & she says she didn't bang her head - everyone asked that

sorry, I should have read more of your posts, I didn't notice that it had already been answered.

The reason I asked is because my GP told me of a case of an old man who had a car accident and went blind as a result - whether it was a neck or head injury was never clear - but a few years later he had a fall and it reversed whatever had happened in the carcrash and he could see again. Anyway - the relevance to me and possibly to your DD is that I had transient positional vertigo, apparently (according to ENT) caused by inner ear damage - but it wasn't, it was due to neck tension because of a bike accident that had caused my neck vertebrae to be out of alignment. Anyway, an osteopath soon sorted me out - bye bye transient positional vertigo. It was just another avenue to consider if the medics can't get anywhere with your DD's case.

(I didn't mean to come across as stroppy or anything - I'm just so knackered; Pixie should have been on-line when she was feeding this am, I'd have been here)

Thanks for that - I will investigate it

you didn't come across as stroppy, just fed up with the whole thing, really!

personally I would not accept a diagnosis of "psychological illness' (which is what they are saying) without having gone to Moorfields. I know of too many examples of "psychological" problems having a genuine physical basis and the psychological issues having either disappeared or dramatically reduced once the person was no longer ill!

I don't know your history or much of the medical terminology on here so not sure if this is relevant after your GP visit, but I can really wholeheartedly recommend Moorfields. My DH had an eye infection a few years ago and got referred immediately. There was no stone unturned in sorting that out - they were wonderful. While he was under their care he mentioned an ongoing problem he'd had causing huge headaches and they did everything they possibly could to find the source and have really helped with continual tweaks to his prescription etc. They basically have everyone you could possibly need for eye things under one roof - opticians, opthalmic surgeons, neurologists - and DH found it was very much a one-stop shop in that he was shuttled around all the relevant people in one day so they had all the information to hand to rule in or out everything they could.

I have only ever heard excellent things about Moorfields - never even just okay, always excellent - and our experience with DH was just the same. So if you want to be absolutely certain of ruling out a physiological cause then I would definitely recommend you try to push for a referral to Moorfields.

Ok, so they don't think, based on the tests, that there is anything wrong with her eyes, so that leaves the conversion disorder.

But, shouldn't they do the MRI to make sure there's nothing wrong with the brain?

So I am ringing Moorfields to ask what tests should have been done before making a diagnosis of 'conversion disorder'

Then I can ring the hospital to ask what tests she had done

Then I will know if the local hospital has done everything they should have

That sounds rational doesn't it

sounds rational, yes. Hope you get the answers you need. If not, hope Moorfields can help you.

sounds sensible. good luck x

I do get the feeling I am an insane over protective mother

Can I also put in a plug for a trip to the optician? There has recently been a big news story here (Ireland) about an optician diagnosing a potentially major problem just from a basic eye exam. It was a chain place, not a swanky optician. A good optician should be able to help you with the right words to say and questions to ask. (My dd2 had to have abdominal scans when she was 11, she was interested rather than scared or worried, although obviously not 'inside a machine'. I know a man in his sixties who wasn't able to do that!)

don't be daft. what are you supposed to do, nod and smile and make a cup of tea whilst you wait for a) the profs to come up with something, or b) her sight to return to normal?

i think you're being remarkably calm lol.

can you get the school to galvanise a bit of action? (there should be an allocated school nurse in the system somewhere) i wonder if a 'professional' request for information from her and discussion with you afterwards would help to get some more info?

(and yes, have you called them?)

They can't talk to me without a referral from my GP

Ever decreasing circles

Katymac-have you seen the messages from DandyDan on your other thread? He has bumped it 3 times today for you.

Sorry I didn't

I have now & am reading

they can't see you without a referral so ask your gp to refer you.

Moorfields website has a section on diagnostic tests that children might undergo tests

I have no idea if these tests are relevant but I'd want to be sure either that my child had them or that I had a convincing explanation of why they weren't relevant.

She had the dilating drops & the refraction one

Sigh - hopefully the CAF will help with stuff

Don't have one

I'm pissed off
I'm knackered
I feel like shit
I'm not sleeping
My work is suffering
As is my relationship with both DD & DH

I think I might be depressed

[bisc

Or maybe pissed off