Hi Bumbly,
It totally makes sense, I have studied my daughters eyelids for hours over the past few months. The position of her original crease changes. I think this is because of the puffiness, it makes the original one lower but a second forms because the skin above is so puffy that it can't seem to hang over like the other eyelid does. It opens slower as well almost seems to flicker at times.
When it first happened, it totally took over my life, thats why we went private. She also had a few photos in which the pupil in her bad eye was white instead of getting red eye so they checked for tumours in the eye. As I say, thankfully everything was normal. They said it was just due to the light reflecting differently. Have you ever had this ? I couldnt eat, sleep or function at all but since it has come and gone a few times I just keep thinking it is either allergies or teething or colds/infections and my doc has assured me she will get to the bottom of it ! The private specialist confirmed her eyesight is normal.
One thing that gives me hope is that there were 2 days last time it happened where both eyes went exactly the same, both had the extra crease and she had a bad cold/ear infection. The doc gave her antibiotics. It had only ever been in her left eye before but for her right eye to go the same it must mean there is nothing wrong with the left eye. The doctor described them as puffy and said it could be that its just to do with colds/virus but that puffy eyes are very common with food allegies/intolerances. Has your childs only ever been in one eyelid ?
Also she has a new tooth coming through at the moment, her cheeks are bright red, she is biting like crazy and the eye is bad today.
One doctor said maybe its just the way she is...... so I said why does it go back to normal and keep changing then.... to which he looked totally blank. When her eyes are "normal" she has really beautiful symmetrical eyes.
Yet again, I have gone on...sorry. Is it as bad/noticable as when your little one was younger or does it happen less often or is it just the same or worse? Have you noticed the original crease position changing ? Like sometimes the crease is higher so more lid shows and other times its lower so no lid shows at all. Does any of this make sense?
I will try to post some pics later on tonight or tomorrow, could you do some as well so we can compare ?
Please keep in touch, we may well be able to help each other.
Thank you again.
Jo
PS I was told that with ptosis the eyelid would be smooth, not have a second crease.