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Children's health

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Problems with ds...hearing related.

3 replies

pucca · 11/11/2009 13:15

My ds (3.3) has a moderate hearing loss, which so far they have put down to glue ear, but not sure if there are any underlaying issues regarding the loss of hearing. We haven't got that far yet. He is congested all the time, dribbles still alot, and tends to have his mouth open alot even when sleeping. He is due another hearing test but they have said the audiologist has broken his leg so we may have a long wait on our hands, they do not seem to want to help, i even asked about cancellations, other areas, but this was disregarded. So its the waiting game.

I feel this has been a issue from him being a baby, his speech is poor, and he is seeing a speech therapist for this. He also has behavioural problems, infact has been fully assessed but because his eye contact is good they have now discharged him on this side of things, although i am still not certain. He eats odd things, such as washing powder residue, sand etc. He is quite aggressive, and displays some OCD type behaviour.

He very hyper all of the time, and it is really getting me down, he is not sleeping and i am exhausted .

He is also not doing too good in pre-school, he tends to play alone, and because of the hearing loss and speech problems, he is having difficulties mixing. He starts school in Sept (only just 4) and i just hope things don't get worse. I really need this hearing issue sorting out, i have spoken to the manager of pre-school, and will also have the headteacher involved (she is the SENCO) i am waiting on the health visitor calling me back.

I really cannot afford it, but was wondering if anyone knew how much it is for a private hearing test? also is it likely ds will get any additional help in school?

Has anyone been through similar, it is really getting me down, and my heart aches for my ds, i just feel like i have hit a brick wall at the moment.

Thanks (i have also posted this in special needs, i need as much help as i can get )

OP posts:
hatchypom · 11/11/2009 14:08

Try the burwood centre in thatcham, otherwise there are some private ped audiologists, particularly in the major cities.

Often, hearing impaired children can get very rigid in routines and focus, as they don't have the distraction or it helps them to understand the world around them

Hope that helps

pucca · 11/11/2009 14:31

Thanks hatchpom...i appreciate the reply.

OP posts:
pucca · 02/12/2009 14:46

Well he had his other test today after me nagging anyone who would listen , and he still has a moderate loss. They have said that his uvula (dangly bit in throat) has a ridge which indicates its a prolonged case of glue ear, so grommets wouldn't be possible, no point.

So they have taken a mould for his left ear today,(the worse ear) and he gets a hearing aid next month. His air pressure test was completely flat on both ears.

Anyone heard of this uvula thing before?

Thanks

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