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Can anyone give me any advice on glue ear please - my poor ds cant hear a thing .

5 replies

fakeblondie · 11/05/2009 09:46

I probably know what i need tbh but anything else would be really appreciated.
My 2 dss had grommets and when ds became a little deaf at times i thought id give him a chance to grow out of it.
Weve tried reducing his dairy intake and that does help a little. hes on a nasal steroid now and a new medication to make his mucous more productive.
When he had a couple of hearing tests aged 4 ish they were ok but i knew they would be because when hes fine hes just that-completely fine.
My edd did exactly the same-at 4 i said she couldnt hear too well sometimes, and they said her hearing was fine.Then just like ds at 6 they said omg shes almost completely deaf .

Anyway this time hes almost completely deaf. I feel so sorry for him and hes getting upset himself.
I saw the gp who said his ears were far from normal and he would refer him to ent straight away.
Any idea hop long it will take-i cant afford to go private.
I hate seeing him like this but at least he isn`t in pain.
Is there anything else i can do to improve glue ear-is it too late for a cranial oesteopath ?
Will try anything-thanks x

OP posts:
Are your children’s vaccines up to date?
cthea · 11/05/2009 09:54

It's horrible.

Have his grommets fallen out? My DS had several sets of grommets, lasting between 2 and 12 months each. From what I can remember when I was desperately looking into this grommets are the only thing that help. (We've tried a few other things too.)

While you wait for the ENT (around £800 privately) you can help him by getting his attention before starting to speak etc to help him lipread a bit.

fakeblondie · 11/05/2009 10:17

Thanks for your reply.
No he never has had grommets its just become a major problem this last few weeks.
GP was lovely tho and said given how bad he was hes refer him urgently . I am also trying steam when we get time .- hes very snotty everywhere iykwim

OP posts:
Reallytired · 11/05/2009 14:40

My son was the same and really benefitted from having his adenoids removed, however his grommets were a disaster. The grommets fell out after 8 weeks, the holes took ages to heal up and he had constant infections.

I choose for my son to have temporary hearing aids instead of grommets. My son had digital hearing aids on the NHS and did really well with them.

fakeblondie · 11/05/2009 14:46

Wow what a good idea.
My dd had numerous infections after her grommets also and ended up back in hospital for a week afterward.

Thanks for that i will definitely ask.

OP posts:
Reallytired · 11/05/2009 15:49

You would need to get your daughter refered to paediatric audiology which is different to ENT. ENT surgeons generally are not in favour of prescribing hearing aids for glue ear. Hearing aids are not as effective as grommets, but there is the advantage of no operation and fewer risks.

I am sure that your GP could refer you to paediatric audiology. Especially as ENT department are often a bit useless at testing the hearing of a small child. Paediatric audiologists use toys and games where as most ENT departments do an adult style hearing test.

If you have problems then I suggest you contact the national deaf children's society for advice. You might need to push a bit as prescribing hearing aids for glue ear is relatively new.

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