[sad] and <<argh>> and <sob> for DD3 because of a small hospital eff-up!

[psychomum5]

really feeling very very for poor DD3 at the moment.

she has what we thought was confirmed cyclical nuetropenia, and had been (so I was told by her paed) referred to southampton hosptial last october, but I had heard nothing so rang them and also got our GP to ring, to find out what was going on.

anyway.................

received a letter today telling me that before they want to see me they want a block of bloods done (twice a week for 6/8wks).

the problem is, we did that this time last year, and it was traumatic all round (as you can imagine for a then 9yr old, even with the 'magic cream').

so, I rang the paed to enquire exactly why she needed more bloods for the same reason as before, and it seems that the results have been mislayed.

now, I realise things like this happen, I really do, but someone somewhere has fucked up and I am feeling sooooooooooo sad and angry, cos it is not them having the bloods redone, it is my 10yr old, and it is yet anpother year of us not knowing exactly what is wrong with her

I know this is a rant that no-one can help with, but some attention would still be nice.

please

Check out the chocolate thread

Can you ask if someone else can look and see if the bloods can be found as your DC finds it so traumatic and it isn't nice for anyone?

Poor DD

I take it the results are definitely lost and gone forever - sometimes they could be there on the computer but not in her actual notes....or could have been copied to the GP (unlikely)

hopeful

am going to go to the GP's tomorrow me thinks as they were the ones who did the bloods so am unsure as to how they got lost TBH.

the hospital still have her booked in tho, and I am not allowed to not go apparently

So sorry to hear this.

Who takes the blood, a Paed doc or a phlobotomist? (sp?!) I would ask for a paed phlobotomist to do it, they are fantastic.

I know the trauma is another thing entirely, but maybe getting an expert will make a shit situation better.

ILTMI, she is booked in on the childrens ward for the bloods to be done, so yes, they will at least know how to be gentle.

tis annoying tho as they have to be done at 10am every friday and monday, starting this friday, and so she is going to miss half day of school those two days for the next while now (the childrens unit is a half-hour drive away)

herbie, I know exactly how you feel. DS2 is under southampton (for his belly), and yes, you wanna scrub it all!!).

tis her little finger, and it is still broken, still a dreadful colour, but she is lots better thankyou. the bone down the side of her hand is 'buckled' too, which also has gone a fab colour. she is holding up well tho.........and thinking about her 'pressie' for being brave already.

thats my girl, materialistic thoughts will help

oh god, worse

we also found the reason for DS2. IBS poor love, but an anser none-the-less.

how old is your DS having the brace?? my DS1 has to have a brace fitted in may, and we are all fretting. he is 9, and I am trying to reassure it that it won;t be bad, and think of the outcome etc. not sure he is convinced TBH.......

sorry, he will be 9 (in may, just after the brace being done!)

ah, now vanity was an appeal I thought would work with DS1 (he ensures each day his hair looks good), but he turned round and said that he doesn;t need to look better, he already looks fab as otherwise he would not have three!! girlfriends already

Oh No Psycho, ds is under Southampton and has bloods taken nearly every other week for the past couple of Months there and we haven't had a problem (I think ds quite likes the nurse there too ) They have a special room & nurse there for children having blood which makes it a lot easier for me ds

oh yes, the butterfly room ther is lovely.

shame DS2 was not of the same thoughts when he had his done. came out an loudly told all the waiting children about the evil nurse ho stole all his blood and now he was going to die

I wanted the earth to swollow me up that day!!!

oops Psycho! Ds plays up everytime he goes in there until he sees them put a dvd on and distract him by which time they have usually done it!!

Can you ask the play therapist to help if she has a fear of needles? DS wa slike that when he was young, he needed bloods on a fairly regular basis as well as cannulars..it was not the most joyous time of his life.

good thought on play therapist