Claiming Disability Living Allowance for my daughter who has Cystic Fibrosis

[EmmaH910]

Can anyone give me any advice about getting DLA for my daughter who has cystic fibrosis? We had it awarded at middle rate, then they said they were going to reduce it to lower rate so we appealed. We're going to the tribunal in a couple of weeks and are a bit worried about it.

Does anyone have any experience of this or can offer any useful advice??

I can't offer much useful advice except to say have you spoken to Carers UK? They were fantastically helpful to me in filling out my DH's DLA claim form.

Others will be able to advise more but have you been in touch with any CF charities? I googled and found CFT.

Emma, there are lots of people on the Special Needs board with advice from long hard experience of applying for and appealing DLA. It will be worth your while starting a new thread there, too, or linking to this one.

The organisation CAF, Contact A Family, is very helpful with DLA applications if you have ne in your area.