It's so heartbreaking to read all these posts- so many children and parents suffer because those in the medical profession dismiss symptoms tied into reflux, or GERD, wind and food intolerances - the dots are not being properly joined by the medical profession, and it is such an exhausting and emotionally draining thing to deal with. People who haven't had a reflux/ food intolerant child have no idea how hard it is! I often think, god if a little non life threatening thing like this is so awful, imagine how bad it must be to have a child with a really serious condition. It doesn't bear thinking about.
Anyway, my story....
My second daughter spent her nights screaming in agony from a few weeks old, with terrible wind (it smelt really rotten), green slimy stools, tired from not being able to sleep. I assumed it was colic for while but it was so distressing I did some internet research (The health visitors had just said 'oh poor you' when I told them my baby cried every night, and I thought - rightly it seems - the gp would just say the same)and cut dairy out of my diet. It made a huge difference so I went to my gp and asked to be referred to a specialist. They diagnosed reflux and suspected cows milk protein intolerance, so I kept on with the dairy free diet for a while in order to continue to BF. When she was weaned it was onto cow & gate pepti jnr, which took her a while to take as it's not very nice - but at 22 months old now she loves it. She also had gaviscon to help with the acid production.
Like others who have posted here, I always found her hard to wind. She used to have trouble getting the farts out, and would cry in the night, but that seems better now. I would get her to tuck her knees underneath her and rock her side to side, and gripe water helped too (and it's nice and natural).
Still she often, after having her bottle of milk, has a huge bubble at the top of her stomach, so you can hear the milk and air all sloshing around, but to get that air out is really hard. i find it hard to understand that the esophagus will let acid back up but not wind, perhaps it's because the muscles spasm? anyway, often when I give her gaviscon it helps the wind to come up (because it relaxes the muscles that contract when the acid comes up I guess), combined with vigorous back rubbing and rocking side to side, so I wonder if that might help some of you. I am definitely going to take the bottles away and try the nuby cup as I am sure that will help. She does have a dummy, and I constantly change my mind about whether it makes it better or worse. Teething without doubt makes it much worse.
Most days now she is fine, but she is still not symptom free. Even a few weeks ago she was writhing in agony on our bed, and I said to my OH 'this is probably what they called being possessed in medieval times', she was screaming like a demon, you couldn't touch her, and we felt so helpless.
So even though she is dairy free it seems to me there are still other causes of reflux, and I may look into some of the ideas above such as getting her allergy tested to see if other foods are doing it, or seeing a kinesiologist.
When I saw another specialist more recently they suggested that some babies have reflux because things trigger it, while others have it as a physical condition that can be triggered by foods, but is an inherent physiological condition. I think this might be what my dd has, as she gets reflux even if she cries too much (makes it hard to give her time out or leave her to cry, so she is becoming a bit of a handful!)
This specialist was good at explaining that you can't increase their tolerance by exposing them to dairy, you can only test for improvement by giving them foods. It should be a measured amount such as 2 teaspoons and you would give it once a day for 2 days then stop. If they react badly there's no point trying again for 6 months. There is a tolerance ladder which ideally they should progress up which goes like this
stage 1 - cakes biscuits and pastries using milk powder or butter
stage 2 - a small amount of milk or cheese cooked in the oven for half an hour
Stage 3 - home made custard, cheese on toast, rice pudding
stage 4 - plain cheese, yoghurt, ice cream, progressing to small amount of heated cows milk (50ml)
Stage 5 - unheated cows milk (50ml to start)
We haven't made it past stage 1 yet, and I'm not even sure I should allow her those things sometimes as she still has acid attacks, but it's so hard to keep so many 'treat' foods away from a toddler, especially when they have an older sibling.
I am constantly told that most of them grow out of it by the age of 2, but we're 2 months off from that and no sign of the reflux or dairy intolerance going! However, living with it is much better than it used to be, most days she is fine and she sleeps through more and more nights all the time.
I want to thank everyone who has posted because it gives you new ideas to try, I hope my post will help someone.
For all those who are still in the nightmare stage, it may not go away in a hurry, but you do get better at managing it as you find out what works for your little one, and the sleep does gradually improve!