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Children's health

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Original poster

I am so sad for my DD

54 replies

ComeWhineWithMe · 11/02/2009 16:10

She is 9 she has dyspraxia and is already classed as odd by her peers .
She had an eye apt on Monday and the doctor wasn't happy with her sight in the right eye and said she would contact me in a couple of days after chatting with the consultant.
She rang today and they would like her to wear a patch for up to 6 hours a day ,she also mentioned that it could be better for her to wear it for a couple of hours in the schoolday because her bad eye will be doing more at school .
When I told her her face fell and she said "they are all going to laugh at me Mum"
and she is right they will ,the SENCO says she will have a chat with her tomorrow and I know on the long run it is in her best interest I am just so sad for her and I know how cruel kids can and have been to her in the past.

Not looking for a solution just needed a little sympathy moan .

OP posts:

RubyRioja · 11/02/2009 18:23

This reply has been deleted

Message withdrawn at poster's request.

jabberwocky · 11/02/2009 18:25

That is too bad. FWIW, I'm and optometrist and your eye doctor seems to be a little behind the times. We haven't done 6 hour patching in the US for years now as studies have shown you can get the same results in 2- 3 hours.

RubyRioja · 11/02/2009 18:25

This reply has been deleted

Message withdrawn at poster's request.

jabberwocky · 11/02/2009 18:25

That is too bad. FWIW, I'm an optometrist and your eye doctor seems to be a little behind the times. We haven't done 6 hour patching in the US for years now as studies have shown you can get the same results in 2- 3 hours.

jabberwocky · 11/02/2009 18:26

oops, sorry for the double post

RubyRioja · 11/02/2009 18:27

This reply has been deleted

Message withdrawn at poster's request.

LynetteScavo · 11/02/2009 18:28

As the mum of a DS who was patched for 2 years, I know how tough it is. Odds are though that at least one child in the class will have been patched at some point.

When DS went into his Y1 class, I asked the teacher to talk to the class to explain to them why he had to wear it, so the wouldn't all ask him seprately, and that seemed to help. All the kids were fine - only one mum was an idiot when she saw me wresting DS to the ground to get the patch on him, and said "What has he done to his eye?"

I will personally come and do my scary angry shouty thing at any child you laughs at your DD for wearing a patch.

spicemonster · 11/02/2009 18:32

Your poor DD! Girls can be such cows can't they? My nephew has ASD and dyspraxia and although I'm sure other kids do take the piss, he has a couple of really loyal friends who really protect him at the moment (he's the same age as your DD). It's much harder for girls. But you can tell her from me that the other girls are jealous because she's so much more interesting than they are so she should try and feel a bit sorry for them.

Anyway - I know you wanted sympathy, not solutions but I think ruby's idea is a blinder - she can be a cool pirate! And jabberwocky's POV is worth looking into.

onebatmother · 11/02/2009 18:38

that's interesting Jabberwocky - don't suppose you could find a link to the tests so that CWWW could print it out and show to GP?

Then it could all be avoided (though doesn't solve the problem of the vile girl.Perhaps you should take Lynette up on her kind offer )

themildmanneredjanitor · 11/02/2009 18:43

This reply has been deleted

Message withdrawn at poster's request.

jabberwocky · 11/02/2009 18:48

Sure, [http://www.everydayhealth.com/vision-center/strabismus.aspx here's] an article and if you google "strabismus patching 2 hours" you will come up with loads of links.

jabberwocky · 11/02/2009 18:48

link

VeniVidiVickiQV · 11/02/2009 18:52

oh yes, I'd listen to jabberwocky every time. She is very wise

jabberwocky · 11/02/2009 18:56

Thanks VVV

VeniVidiVickiQV · 11/02/2009 18:59

Tis true. You recommended a book by Elaine Aaron that was fantastic for us.

jabberwocky · 11/02/2009 19:02

I remember I am so glad it worked out well for you. Have thought about you and Pan and the great thread we had going about that.

DaisyMooSteiner · 11/02/2009 19:03

Have you asked about atropine eye drops which act as a sort of physical patch on the 'bad' eye? It dilates the pupil, so the eyes do look different, but it's certainly less noticeable than wearing a patch.

mummytopebs · 11/02/2009 20:44

Hi can i just thread crash and ask a question. My dd is waiting to see someone to see if she has aspergers and she has just had an appt and they said she had poor vision in her right eye-is this quite common in aspergers? Also have any of your dc with eye problems experienced flashing in their eyes (people may have seen some of my threads, this is mystifying doctors)

jabberwocky · 11/02/2009 20:54

there has recently been quite a bit of talk about vision problems being the root of many of the stims of ASD kids. Is her poor vision correctable with a prescription or is it amblyopia? An evaluation with a behavioral optometrist would be a good thing to do in either case really.

I would need to know more about the flashing. Haven't seen the other thread. A complaint like that is always worrisome as it is a symptom of retinal detachment but can be other things as well, such as an ophthalmic migraine.

Original poster

ComeWhineWithMe · 11/02/2009 21:09

Sorry for taking so long to come back to thread .thanks all for replies and links .
I am really having second thoughts about her wearing it at school TBH and will chat to dp about it later I just don't think she can take anymore of her confidence knocking .

Jabber I thought six hours was a very long time too ,will ask why so long at our next appt .

OP posts:

onebatmother · 12/02/2009 08:27

why not print out jabber's link and take it with you for the GP, CWWW? Might make him/her sit up a bit.

onebatmother · 12/02/2009 08:28

and don't say you got it orf the interweb!

"An acquaintance who's an optometrist pointed me towards this paper.."

cory · 12/02/2009 10:36

I wasn't patched and went on to develop quite a bad squint- which led to bullying. It's one of those can't-win situations, simply because the problem lies not with the victim but with the child who feels a need to bully.

Dd who went to a school that was very strict on bullying managed to get away with intermittent wheelchair dependency and incontinence, without ever getting bullied. Which strengthens my belief that it's not about the victim but about the people around.

I'd do whatever your dd needs to have her problem sorted. My vision has been a source of trouble to me throughout life.

DaisyMooSteiner · 12/02/2009 11:32

Thing is though, that link says 2-3 hours is fine for children with mild to moderate vision loss. My dd had to wear a patch for 6 hours and the consultant was quite clear that it was because her eyesight in the affected eye was terrible. Is there any evidence that 2-3 hours is enough even in that case? I've got an appt with the orthoptists tomorrow, so would be very interested to know!

jabberwocky · 12/02/2009 13:16

Okay, here's somemore ammunition information for you A recent study of weekend atropine

atropine vs patching

2 hours of patching in moderate to severe amblyopia

The problem with prolonged patching in patients with severe amblyopia is that the poor child cannot function well at all with the patch on. Think about it, you have 20/400 in your amblyopic eye and you are supposed to go about your day with only that vision for 6 hours. Miserable!!

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