any experience of m.e after glandular fever???

[jollyoldstnickschick]

My ds2 aged 13 has had m.e 'type symptoms' for a long time after loads of blood tests over the years recent tests have shown that at some point hes had bad glandular fever-hes quite poorly on and off with it and the specialist believes its likely that he now has cfs/m.e .....any advice?help or anything constructive would be much appreciated.

bump

Hi there -I do not have a great deal of help to offer but I had severe glandular fever in my late teens and conventional medicine has no answers just antibiotics for infections which only weaken the immune system more. I was completely back to normal after 6 weeks of treatment from an alternative medicine practioner - chinese herbs and homeopathy. It really is worth a try as ME is so hard to recover from.
HTH and best of luck

thanks hes been ill on and off for 5 years

I had glandular fever myself during my A level years with post glandular fever problems of chronic fatigue and very bad bouts of the old glandular fever symptoms coming back every few months. My health and energy levels were completely unreliable. I spent years looking in to complimentary help and in the end trained to be a nutritional therapist so I could sort myself out. I then ended up specialising in this area to help and support others in similar predicaments. If you are interested go to my web site page:
www.glandularfever.me.uk/glandular_fever
I found what you ate to be extremely important in controlling and managing your health, but alongside this acupuncture can be extremely beneficial. Any other complimentary forms of help usually work much better if the system is nourished correctly.
On-going glandular fever troubles are very frustrating and most people just do not understand what it is like to feel this way, which of course makes life even more difficult to cope with. Stress is not helpful which you may have worked out already.
I never thought I would be well enough to cope with having children but ended up with 3 little girls. We also started a new house build the day after the first one was born!

I have ME so lots of sympathy to your DS.

It is a nasty illness and will as I'm sure you are aware will effect him physcially and mentally.

Things that help me:

not doing too much on anyone day and 'listening to my body'

after a long and agonising decision antidepressants (on a very low dose)they have MASSIVELY helped but were nasty to start with for about 3 weeks (felt suicidal).

Cognative Behavioural Therapy

Changing diet - No wheat (found out allergic) little sugar. lots of slow burn food (porridge etc).

avoiding aerobic exercise

avoiding alcohol (shouldnt be too much of an issue!)

Acupuncture/reflexology

my cousin had ME and completely swore to 'mickle therapy'(sp?) she is much better now. I can't afford to go to the therapy and it isn't available on the NHS.

If my DH were here he would also offer his sympathies to you. I do have mood swings and can't 'deal' with stress well and get a bit over the top hysterical. This has almost gone since being on the antidepressants though. It can be very frustrating to live with. Also as he will probably seem ok one mintute then not the next it can be hard to understand.

Action for ME is a useful website.

there are also ME clinic as across the country and some consultants are ME specialists. Push for them, I went to one outside of my bourgh.

A good book to read is 'living with ME'.

Your poor boy, it's hard as an adult but worse as a child I really hope he starts feeling better soon.