Morphea

[katyamum]

Has anyone had experience of Morphea? My daughter is 6 and has been diagnosed with it, and we are looking at a long road ahead. Thanks

Hi Katyamum,

Sorry to hear you and your daughter have been having a hard time. I don't have any personal experience of Morphea but I didn't want to leave the thread unanswered. You might not find anyone who does have experience here as it is very rare. In case your doctors haven't already pointed you in this direction you may find this helpful. There is a link at the bottom to the UK scleroderma society which might be helpful as Morphea is related to that (but only affects the skin). There is also contact a family ignore the tagline about it being for families of disabled children - it actually covers lots of things and is very good for making contact with parents whose children have similar rare diagnoses.

All the best

thanks for the reply. I did actually read that exact article earlier this evening, but thanks for sending it. I might get in touch with the UK scleroderma soc - we'll see how we get on with the treatment. Was mainly interested to know if others had experienc eof the methylpre + methotrexate combo that we are facing. Anyway, thanks for your reply. It was nice to log on tonight and see it.