my dd had a seizure last night

[cariboo]

Dd(8) was in the kitchen serving herself some more chicken & suddenly there was an almighty crash. I rushed in & there was dd on the floor, eyes rolled back, convulsing... I shouted for dh, who saw the convulsion too & then dd came to. She was dazed but not frightened. She seemed confused, asked me an nonsensical question.

I've just called the paed & am waiting to hear what we should do next. Feel sick with worry.

Belgo please tell me what else can cause seizures! I don't want to know but I do, iyswim! A tunour? Please God, not a tunour.

I

cariboo - I'm not a doctor but there are less serious causes of fits. My dd1 has had several fits due to reflex anoxic seizures, and there is absolutely nothing wrong with her, it just means that sometimes when she gets very emotional or hurts herself suddenly she has a seizure.

DD2 had a fit caused by a febrile convulsion - her temperature went up very high.

Those are just two examples of less serious causes of seizures. Try not to worry (hard I know)and wait and see what the doctor says and the results of the tests.

A week seems like an eternity! She had 2 "night-terror/seizures" last night but while asleep. I've been watching her like a hawk all day. If anything, she seems to get them when esp tired.

has she had tests or EEG's about these night episodes?

Cariboo, no advice or opinions but wanted to offer my support and sympathy, how awful for you all. I hope the poor love is OK..Best wishes.

There is a chance this may not be epilepsy. She's very old for one, but could it have been a febrile convulsion? My DD has had a couple - it's hereditary apparently, but is a reaction to a high temperature. The body kind of shuts down to cope with it. It's pretty scary, and looks like any other type of fit.

oh dear God, she's just had another one! Had I not been on my way upstairs, she would have fallen down them under the influence of the seizure. My husband refuses to be upset & insists she sleep with us until her appt next Fri. But I can't wait that long! I'm terrified, absoluely bloody terrifyied shitscared.

WHAT IS GOING ON IN HER BRAIN?!

Please, my MN friends I need your support & knowledge.(sad)(shock)

I think you should just take her to A&E the next time she has one if you are very worried. Seizures can be very scary especially as you wait to find out why she is having them. An EEG will be able to tell you what is happening in her brain. I hope DD, you and your family are ok. Just watch her, there is nothing else you can do as hard as that can be. How long was the seizure? We have set up a cctv camera in DD room so we can see her all night and have a sound monitor aswell, very reassuring.

Hope you have a better day today.

if she has a seizure then take her to A&E straight away. Call an ambulance.

I agree, take her to A&E - too distressing to wait.

she had another seizure at the top of the stairs last night - thank God I was on my way up & was able to catch her when she fell. She wanted some water, apparently & that's all she remembers. (did i mention this before?) Anyway, she had 4 more during the night so I took her to emerg this morning. Have just come home to get some basics - toothbrush, etc - and to give ds a hug & dh an update and then I'm going back until she falls asleep.

Will let you know what happens. I heart mn.

Hope shes ok

Scaryboo please let us know how you're doing.

It is the most horrible thing. My dd had her first seizure a year ago at 14, she had a few more and is now on epilim which controls them. However she gets very drowsy and headachey and I do worry about side effects of the meds.

Please don't get too hung up about epilepsy - it's an umbrella term which really means unexplained seizures. There are dozens of different types of seizure, sometimes the doctors will find a cause or a trigger, but very often it's unknown. If your dd does need meds then so be it - just take advice from the doctors.

hope every is ok scaryboo

Spent all day in wretched hosp with dd today. She shares a broomcupboard room with a 13 yr old drug addict. Dd had an 'inconclusive' EEG today. Tomorrow night she will be wired up again and monitored (filmed also) all through the night. I'll be there with her. Meanwhile, ds with my mum & behaving beautifully but what punishment will he have for me when everyone's home again? Sorry to be such a cynic but I'm so tired & discouraged.

Scaryboo- sorry to hear that DD is still in hospital, hopefully tomorrows EEG will give you some answers. Hope you manage to get a break from the hospital, they are very draining places just sitting around all day.

Sorry that you and DD are going through this.

I'm hoping the nighttime EEG will give us some information. If there's no evidence of abnormal brain activity, what else could be going wrong? And yes, I'm thinking tumour. And feeling ill.

How did the night time EEG go? How is your DD?

Dd finally diagnosed this evening with frontal lobe epilepsy. Am in shock. My marriage is also unravelling after 10 yrs.

Sorry to hear this. I hope someone comes along with advice soon.

Oh, I wish! If I keep posting on this thread, someone with similar experiences or neurological background may see it. for everyone else, support is welcome...

Oh Sacryboo, am so sorry that your dd is going through this. Have no experience, but send you hugs and am willing you strength to deal with all that is going on at the moment. Stay strong! At least you have a diagnosis, I'm no doctor, but am assuming that drugs will help immensely and that dd's condition can be managed with them. Take care. x.

Scaryboo, sorry to hear you're going through such an upsetting and stressful time. I could give you information from the other side - I was diagnosed with epilepsy when I was 13 or 14. I started taking medication - Epinuten (sp?) didn't really work for me, but I was fine with Epilim, which I took for a couple of years. Apparently a lot of children grow out of it. In my situation not the case, but even when I stopped the medication I stopped having seizures as I could "feel" it coming the previous day and would sleep all day and then it passed. With the exhaustion of a new baby I've (with the support of my neurologist obviously) started taking a very low dose Lamotrogine again, but aim to stop again in a couple of months. I have no side effects from the medications btw, am just lazy to take pills, vitamins included.

I'm rambling, but what I mean to say: having been diagnosed with epilepsy had absolutely no negative effect on my life. I realise some others have a harder time and sometimes uncontrollable seizures, but the fact that my parents accepted (ok, as a parent now I assume they just pretended, I would be really upset if it happens to my son too) this as a normal part of life meant I accepted it as the same.

Unless your daughter starts having uncontrollable seizures more often, don't keep her out of school. Because it's something unpredictable it helped having the rest of my life as normal. Stress is also a trigger in my case - would it be possible for her to start doing yoga / pilates or something equally relaxing if stress affects her too?

Oh yes, last thing - no family history in my case either, no scars on my brain (injury ruled out), but definitely irregular eeg patterns.

Sorry for the essay, I just wanted to let you know it won't ruin her life. Please feel free if you want to ask anything (not sure if I'll be of much use, but sometimes just talking helps if you're upset, doesn't it?) Good luck with the tests. It will tire her out for the day, but not much different to that "after exam" kind of feeling where you just want to sit down with a coffee and watch rubbish tv.

Sorry to hear that scaryboo, hopefully now she gets the treatment she needs. Seizure medication can control them.