DS is almost 5. He's often mistaken for a 2 or 3 year old. His rate of growth has slowed to only about 2 cm per year, he's now 97 cm and 13 kilos (my 13 month dn is 11 k!)
Seen endocrinologist who wants to trial GH, tho he doesn't appear to be GH deficient, but thinks this might help. We have to apply for him to be accepted onto a trial, and if accepted, they will pay for the treatment for the 1st year, possibly 2. By this time it will be clear if it helps him or not. If it helps, we will have to continue to give him daily injections for his entire childhood - and been told to expect it to cost up to 200 000 euros. OMG
Has anyone had GH treatment for their dc? How was it giving the injections? How was the rate of growth? Was the treatment given on the NHS? Did anything else help or hinder?
I've been told estimated end height around 5 foot (or a bit less) with no treatment, but also that this might not work. Feel kind of helpless and worried for ds & increasingly skint too Worried also about him getting bullied, but so far, socially he's ok, but ends up being with children his own size, ie younger, which in turn I think makes him more immature/hampers him maturing iyswim