DLA for 9 month old with severe allergies and asphyxiation w asthma

[shejokes11]

Hey,
just a question as I think it’s unnecessary. The doctor at the hospital has suggested DLA for my 8 month old as she’s been admitted to hospital since she was born. First time she went blue and floppy with a rash at 5 months requiring antibiotics. Second time she was checked over and allowed to go home. Third time which was recently she had woke up with severe hives all over her face neck body and mouth and eyes. the hives disappeared days after I gave the Piriton. She started wheezing and now is having short asmtha attacks where she cannot breathe and chokes and wakes up at night due to this. She also had a fever and was referred to the allergy centre and given a EpiPen on repeat prescription and a spacer with asthma pump and antihistamines. She touched nuts and touched her eyes and I had to use a EpiPen after being prescribed it as immediately hives all over the eyes. I personally think it’s very difficult at this age to prove care needs are more significant even though I stay up all night and have to supervise her more than I should. I wonder do I wait or let them do it for me?

Nobody will do it for you @shejokes11

You need to complete the application forms yourself. I'm sorry you're baby had been so unwell.

Sorry that your little one is poorly. Send for the forms and it will be back dated to your request date if awarded.
Sounds like you have lots of evidence of medical needs. The hospital Drs or GP will be able to support your application.

edited for typo

Thankyou I’m just very overwhelmed and unsure as my child was born blind and they literally declined and deprived us for years until 2024 hence why I’m thinking is it even worth the hassle.

She said she can complete most parts and others I will have to. And Thankyou

Sometimes it just becomes what you are used to doing every day care for your child so you don’t think to note it down. Are there any local SEN support groups that can help?
Does sound like you have supportive medics on board.
Hardly surprising that you feel overwhelmed. Do you have any support or time for yourself?

I think it's quite unlikely, tbh, because they tend to say that all children under the age of 2 need constant care and supervision. However, if a medical professional has said to apply, you should.

No. They can write supporting evidence but you need to fill in the form yourself. It's very long and you can get help from Citizens Advice if you're not sure what to write.

Or you can go to THIS SITE for guidance.

I'm shocked that your claim for dla was declined for a blind child. What was the reasoning as I'd assume a blind child would need a lot more help and that is what dla entitlement is for. You will need to fill the forms in yourself, they are long but are pretty straightforward just answer as if it's their bad days as that's what is asked. The Dr will give you evidence to go with it. It is worth it because you won't be any worse off than you are now. I got a claim for my dd when she had anorexia, basic rate but it was very helpful for appointments as parking gets expensive and buying food and high cal shakes as she would only eat certain things. I found the money helpful when we needed it and I thought they might say no so I was most grateful when it came though. I'd never claimed anything before. This is what these benefits are designed for people that do need help it's stressful enough with a sick child and taking time off. I wish your children well op sorry you've had a stressful time.

Genuinely no, I’m overwhelmed with stress as I am a single parent. I also have two other children who are blind and one has adhd and I know how stressful the forms get as I have done this before.

That’s the hill I’m stuck on. I think genuinely children her age require a lot of supervision so I’m unsure if this will even be awarded.

The reasoning was he was under 2 which is why I’m sceptical now. I missed out on years of payments all for them to accept him 9 years later. Also I’ve never heard of anyone getting it for asphyxiation or asmtha or allergies tbh it’s very rare.

I would apply. While it can sometimes be difficult to show DC need more care and supervision when DC are young because all young DC need a high level of care and supervision, it is possible to get DLA for babies and toddlers and if the hospital has suggested you apply, I would apply.

When allergies are severe with the risk of anaphylaxis, it isn’t rare for DC to be awarded DLA. Similar it isn’t rare to be awarded for asthma either.

Did you appeal the refusal for your other DC? Unfortunately, too many are only awarded on appeal.

@TheBroonOneAndTheWhiteOne sometimes hospitals will help parents apply including by completing the form with/for them, not just the supporting statement section.

Have I read this right , you have 3 children who are all blind ?

No sorry one who’s blind. The second with adhd. And now my baby has this asphyxiation

They won’t give the mobility what rate do you think she would get? Also I didn’t appeal I was very young (15) and honestly had no support or interest as I was stressed from the diagnosis

I know DC under 3(for HRM)/5(for LRM) won’t be awarded mobility, but the care component can be paid now.

There isn’t enough information to be able to say what level of award, if any, would be made. If the hospital has suggested applying, there is enough information to say it is worth doing, though.