I'm utterly heartbroken. After a healthy uncomplicated pregnancy, my gorgeous little baby was born on the due date and for the first couple of days everything was perfect. And then began various symptoms that meant doctors suspect a rare disease. We got transferred to the NICU where they've since cannulated 5 different times, taken countless heel pricks, might have stoma bag put in and is being fed via a long line. In two short weeks my little bub has gone through so much pain and is likely going to need surgery in a few months. And with possible complications for life.
I'm also struggling with feelings of envy which I know is bad but it feels especially unfair as family and friends have had healthy babies in the past few months (in fact we know 5 babies born in the last 7 months and another 3 due in the next couple of months - all close relative eg. Sister, BIL, SIL, cousins, best friend). And it feels so unfair that we are the 1 in 20000.
Everyday feels like I wake up to a nightmare. I had a c section and given the nature of NICU there's nowhere for me to stay. So I take a 40min taxi everyday to the hospital and DH sleeps in a chair next to baby.
What do I do MN? I can't think straight. It's been 2 weeks with no sight of going home. We also have 3 year old who is feeling very neglected by her parents (she is otherwise well looked after and at her grandparents). Any advice from other parents who have been through similar on how to navigate this time is much appreciated too x