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Hypermobile toddler

2 replies

Timtam22 · 13/07/2025 19:20

Can anyone tell me if their toddler/ child was or is Hypermobile and do I have to do anything about it?
Is this something they will grow out of?
She runs, jumps, walks normally. Doesn’t appear to be in pain but only thing I can think of is that they are a poor sleeper and often wake in the night crying and I wondered if this would cause joint pain?

Hypermobile toddler
OP posts:
DaysofHoney · 13/07/2025 23:36

My kids are both hyper mobile.

We saw physios at (about age 2.5yrs I think) for review because:

  • possible Elas Dahnlo syndrome
  • DS walk gait was poor so he ended up wearing insoles and hi top boots for a year or two

Unlikely anyone will be able to diagnose from your photo so best ask GP to review/refer.

SharpLily · 14/07/2025 00:14

I am hypermobile. Ehlers-Danlos syndrome. It's not something to be taken lightly. If your child is diagnosed, with any luck they won't suffer too badly. However it's not just about being able to do cool party tricks. As an example I always have to make sure anaesthetists are clear on the complications as I'm impervious to some anaesthetics and when they do have me under, my windpipe is floppier than average - not something I was aware of while entertaining the crowds by putting my feet behind my head! Pregnancy was also a complete nightmare in many ways and my hips regularly dislocate since and always will. Not very pleasant. Honestly there are so many associated problems.

Unfortunately even if you get a positive diagnosis there's not a lot in the way of treatment nor support. You will need to advocate for your child - firstly by making sure they avoid overextension of the joints - it might seem funny now but it'll play havoc for them in future. Focus on maintaining good muscle strength to support the underperforming ligaments. There are plenty of support groups both online and in real life, a great help when doctors aren't. However don't make assumptions, get a proper diagnosis, although you may have to push for it.

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