Cancer concerns with ds3

[Mpark]

Over the last 4 months my 5 year old is becoming a child I don’t even recognise - I’m so concerned he has leukemia /lymphoma .
he gets so easily irritated , hasn’t got as much energy as he used to , random 1 off fevers ( fever doesn’t continue for hours / a few days like my other children ). He had blood tests done 2 months ago as he was complaining about feeling sick / stomach ache for 6 weeks ! He had a full range of blood tests for all different things and all came back normal . Does anyone else have a 5 year old who is like this ? Am I over reacting ? 🤷🏻‍♀️

Yes. If he had a full blood count something would have been flagged up with his white blood cells

Have you got health anxiety?
Because you ought to be reassured that your son's blood tests are normal.

Probably tired from school but you should feel relieved that his blood tests are normal.

Why have you started two threads about this?

Maybe his immune system isn’t as strong as the other children. My 4th child was like this and I too worried she was immune compromised somehow. If it’s any consolation she is 15 now and grew out of it at 10yrs old.
I’ve never gotten to the bottom of it but my gp thought her gut health might need help, she had reflux as a baby . She takes a probiotic (Alorex) and this is definitely helping.

Good luck

yhe symptoms above have got worse since he had the bloods though :(

I do slightly but I’m generally chilled tbh - his symptoms have got worse since the bloods though :(

I posted in 2 forums as I was unsure which one to post in :)

Hopefully that’s all it is - his above symptoms have got worse since his bloods :(

Hi @Mpark, this was my DD. She was finally (after 4 years and numerous cancer concerns!) diagnosed with coeliac disease. Has any GI issues been ruled out?

Also, you know your child best: I had 2 GPs and 2 paediatricians tell me that my daughter (who was crippled with headaches, body aches, bloated stomach, horrific heartburn, nausea and small growth) was “just anxious”. Her coeliac results were the highest the doctors had ever seen when I had to push and push for a blood test. Trust your gut.

Sorry to hear she had that love :( he had had terrible constipation since being 18 months - he has laxido sachets to help but even with them he only goes 3 sometimes 4 a week .
what symptoms did your little girl have ?

He has recently had bloods (2 months ago) they didn’t test for celiacs but everything else came back ok but he’s just getting worse. We have a general paediatric app In 2 weeks x

I would definitely push to get them to test for coeliac disease. It causes so many horrible symptoms and, like you, I was convinced my DD had cancer. She was very tired, pale, saying her body hurt (every night she would say “can I tell you about my pains”), bad headaches, very small in stature (she was aged 6 but still fitting in 2-3year old clothing), bad heartburn, awful stomach aches, and such bad diarrhoea. Two GPs said it was anxiety / normal tummy aches (she would be doubled over sobbing) and I ended up taking her to A&E when I was called to pick her up from school as she couldn’t breathe with stomach pains and we thought she had a bowel obstruction. The 2 paediatricians at the hospital we saw said that she just needed to eat watery fruit for the heartburn and pretty much dismissed her other symptoms.

I ended up taking her to a kinesiologist and he was the one who said all of her symptoms were linked to her stomach. I went back to the GP (who at this point was probably exasperated with me!) and said I needed my DD to have a blood test because these symptoms were getting worse and I was really concerned. The GP actually then called me and apologised for not listening to us (!) and my DDs coeliac level was at the highest she and her colleagues had seen. Since going GF, she is now “normal” and it’s a relief to know what was causing it, but frustrating that we had to fight for years to get an answer.

Long and short of it is, if you don’t feel something is right, please trust your instincts. You are their mum and you know if something isn’t right. I really hope all is ok with your DC x

Thankyou so much for all that info love - my sons differ slightly but could maybe still be celiacs and he just had constipation instead of diahhrea ? He has an ent app tomorrow ( not that they can do much ) also debating getting him into the gp also tomorrow ? Or maybe just wait 2 weeks to see an actual peadiatrician? 🤷🏻‍♀️

Yep, coeliac could be constipation as well as diarrhoea. There are so many horrible symptoms that go along with it.

I would see what the ENT team say about him tomorrow - tell them your concerns (I would advise trying to do this away from your DC, as this could cause anxiety if they know you are worried) and see what they say and whether they feel another GP visit is recommended. Also, you could always call the paediatrician and ask to be put on a cancellation list so they call you at short notice (usually day before) if they have an appointment come available. All the best x

I would also ask about inflammatory bowel disease - IBD. This is often associated with diarrhea but some people have constipation. If she's having coeliac tests ask if they could do a calprotectin stool test as well.

How is he going to the toilet?? My son presented exactly like this and it turned out he was severely impacted and I didn't even notice i felt awful. His teacher took my to the side one day after school and told me to take him back to the doctors because even they didn't recognise him. He also had numerous blood tests all fine. Don't rule out any tummy issues

Having a daughter diagnosed with Crohn’s disease I would second this.

According to our GP her bloods was normal except low iron which the GP was never worried about. Idiot that he was because the low iron kept dropping and didn’t help her condition at all.

My daughter used to have nighttime fevers too.

Mine too! Random evening /24 hour fevers.