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Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

1000 replies

YourRubyMaker · 22/02/2025 17:59

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

  • [Message from MNHQ - please see OP's updates before responding]
OP posts:
Newstartplease2024 · 28/02/2025 23:13

I've thought about you and your son loads today OP. Stay strong. We have a child in our family with a brain tumour. She's had it for a long time and they just manage it because they can't get to it. She's been on and off treatment for years and although it's been tough I can assure you she's a happy child with a full life. Head down and get through the next few hours, then the days and you will get some answers. You can do this. ♥️

lifeisacat · 28/02/2025 23:16

I'm so sorry to read your updates. Your poor boy and poor you.
Will be thinking of you all and hope he manages to have a good birthday tomorrow. There is so many treatments these days and I'm sure he is in the best possible hands.
Holding your hands

healthybychristmas · 01/03/2025 00:37

This is so upsetting. As far as the noise in the ward is concerned at night, can't you ask the nurses to tell people to get out of the ward if they want to watch their screens without headphones or to use their phones to make calls? It's a children's ward and they need to sleep. Those adults are extremely selfish. I hope your son gets some sleep tonight and that you do too. We will all be thinking of you both 💐

Poilin · 01/03/2025 01:35

Sending love and strength tonight xx

Evidemment · 01/03/2025 02:05

It's 2am and mumsnet is thinking of you x

Happiest of birthdays to your little soldier

blackpear · 01/03/2025 02:07

Awake and thinking of you both, OP. I hope you have had some rest xxx

YourRubyMaker · 01/03/2025 03:46

So it’s been a terrible night and we need to go. For a emergency mri

OP posts:
Marcipix · 01/03/2025 03:59

I just saw your update. I’m so sorry and sending you a gentle hug.
I hope the morning brings help for your little birthday boy xx

ThisFluentBiscuit · 01/03/2025 04:13

Awake and sending love and strength across the miles. Kneeling and saying a prayer for you and your boy right now. All the way from New York.

TheStigarette · 01/03/2025 04:24

I'm sorry. I'm awake and here with you.

Miloarmadillo2 · 01/03/2025 04:41

Sending you a hug @YourRubyMaker

Difficultwill · 01/03/2025 04:45

I am so sorry you have had a bad night. I just wanted to say happy birthday to your dear son even though it feels so wrong he is having to go through this on this day.

XelaM · 01/03/2025 04:50

Hope it’s good news today x

Semiramide · 01/03/2025 04:53

Thinking of you

Daisymae23 · 01/03/2025 04:54

Keeping everything crossed xx

YourRubyMaker · 01/03/2025 05:01

awaiting The doctor but back to ward atm . Could any please link me some pjs for after surgery ? Short sleeve and if could be Velcro rather than buttons even better so he can do it himself if needed

OP posts:
YourRubyMaker · 01/03/2025 05:01

Also is there anything else that can be recommended as I hadn’t even thought of the pjs until this thread which has been a great help

OP posts:
FungusTap · 01/03/2025 05:20

Flowers, with love to you and your lad.

CorsicaDreaming · 01/03/2025 05:23

@YourRubyMaker - I've had a Quick Look for pjs. It's tricky as so many are pullover head type of t shirt tops. I've found two at John Lewis that are button up (don't seem to be any with Velcro but will keep looking and let you know if I spot one). Will post links

? https://www.johnlewis.com/john-lewis-kids-family-christmas-check-pyjamas-red/p111916770?tmad=c&tmcampid=7&sshare=jlappioss_Y29tLmFwcGxlLlVJS2l0LmFjdGl2aXR5LkNvcHlUb1Bhc3RlYm9hcmQ=

CorsicaDreaming · 01/03/2025 05:27

Another option might be to buy a daywear normal type shirt in a slightly bigger size and just wear it with pj bottoms - more choice that way?

Difficultwill · 01/03/2025 05:28

I found these. They are not cheap but might just be an option

Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]
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