Out of my mind with worry [Please read the OP's updates before responding - Title edited by MNHQ]

[YourRubyMaker]

Someone please just give me some hope I’m so stressed I can’t function , my 10 year old since sept has had a limp in one leg then it became a weekness in his arm and hand on the same side , doctor was useless and made me do it as two separate issues and make another appointment!!! Didn’t take me seriously and Had X-ray on hips all fine (obviously 🙄 ) I went to see another doctor who said im referring it for urgent peadeatric appointment (great so helpful ) and he wanted to refer for mri but couldn’t , appointment comes thro and it’s in fucking June !!!! And that’s a urgent referral , in the mean time it’s got worse and now he can’t run and often stumbles and falls doesn’t use the arm hardly at all , have taken him back and they’ve now booked a mri brain scan for next weekend , which happens to be on his birthday of all days 😭 he’s mental health is shit as is mine and he’s obviously worried , how long does a brain mri scan take please ? And has anyone ever experienced issues like this and it not be something life threatening, I also have a toddler so am still having to be normal and do normal stuff where as I just want to lay in bed and cry

• [Message from MNHQ - please see OP's updates before responding]

good morning @YourRubyMaker - been thinking of you so much over night.
wanted to echo some of the advice on here - save your questions for your doctors as they will know the specific answers relevant to your boy and google won’t.
take each hour at a time and pls look after yourself - food, drink lots of water try and grab naps .
i hope in the real world you can mobilise proper support… especially in these next intensive days when tests and plans are being made. I hope your family don’t need much asking but they should be dropping everything and coming to look after your 2yo so you and your DH can support eachother at the hospital.
It’s good he’s in a proper bigger hospital even though distance is inconvenient. Reach out and ask for help - people will want to do everything they can ❤️
and of course we are here to support and lift you whenever you need us.
sending prayers and positive thoughts to you, your darling boy and all your family xx

Thinking of you all today. I know it'll be the last thing on your mind but please remember to look after yourself too.

Oh my god - I am so, so sorry to read your update.

Sending you all strength and love. X

So sorry to read the update, but he is in the best hands now and as others have said, the NHS is very good at this type of care.
Take notes at meetings, make sure that you ask any questions you need to and push for what you need as well (and look after yourself).
Wishing you, your son and wider family all the best for the weeks ahead. x

I read your update last night and I've thought about you and your son so many times since then. Your posts and update brought tears to my eyes. You sound like a wonderful mum and you will find strength to do what you need to do. I'm hoping all goes well with the MRI today x

Sending so much love and prayers to you and your son. 🙏
Stay strong op.

I'm so sorry for what you and your family are going through. Sending love and hope ❤️

I am thinking of you and your wonderful son today. Sending love and hope.

Thinking of you, my mother in law had a brain tumour, it was quite big but removed with ease, I will be praying for your boy ❤️

I just came on to say massive well done to you in pushing and pushing for an earlier appointment , and i cant help feeling you were successful in this for a reason
I am crossing everything for a good prognosis tofday

Another one here who is thinking about you and your family often. Good luck today x

Op I’m so sorry you are all going through this. You are clearly an amazing mum. I am thinking of you and wishing you the best outcome. Hopefully it can be removed and one day this will all be a horrible distant memory. 💐

You're doing great OP! Keep going! I really hope the medical professionals can treat this and your boy recovers quickly. Sending lots of positivity xxx

Omg read the fucking thread

Or even just the title, which directs your to all OP’s posts! 🙄

Did you decide to just completely ignore the very clear thread title that tells everyone to read OPs updates?

I meant to say, there's an amazing YouTuber called Simone Giertz who makes insane robots and had a brain tumour. She was really open about the experience and the recovery. Might be something to have a look at if you want to learn more without googling loads?

OP, I have read through your thread and just wanted to send you love and strength and a very un-Mumsnetty hug.

Just to echo what others have said before, we're all thinking of you and your family at this challenging time. Lean on any support you have. You'll get through this x

I am so very sorry to hear of your darling boy’s test result, YourRubyMaker, and like so many others, I am keeping you and your family in my thoughts and prayers.

I am holding you and your dear little boy in my thoughts

Oh no, @YourRubyMaker , I am so sorry. DS and I had this exact experience a couple of years ago. MRI interrupted midway to inject die, notified that evening that it was a brain tumour. There is a children's cancer board on here where some of us talk about our experiences and share info. It is cathartic and supportive, as no one else will ever understand what you are going through. X

Sending you light, strength and positive vibes.