Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Children's health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Any tips/ advice for teenage daughters scoliosis operation and aftercare.

6 replies

Wishuponastar21 · 19/02/2025 19:26

Hi all. My daughter will be having surgery for her scoliosis next month. I was just wondering whether anyone else has been through or supported a child through this:
• What to take to make hospital stay better
• how long was the hospital stay
• how to support recovery

Thank you

OP posts:
Chocolatebuttonanyone · 19/02/2025 20:15

Get her hair tightly plaited if long. 2 plaits so not down the centre, as it will keep her hair out of the way while she is recovering.

noodles44 · 19/02/2025 20:24

My daughter was in hospital 7 nights post op.

I would recommend taking fleece blankets and cushions/cuddly toys. We had a couple of her cuddly cushions and it helped get her comfy having them to rest on.

We had a water bottle with a long straw that can be clipped to the bed and she can drink from it easily (sold on Amazon)

We found front button up pj tops helpful. She had 2 sets.

Get lots of snacks/chargers/bring your tablet/book as you stay at the hospital too. I stored my stuff in the boot of my car in a big bag and nipped down to the car each day to just bring what I needed for the day. My daughter liked mango chunks from m&s with the meds and wore slipper socks.

There is a FB group for scoliosis parents (if you search that it should come up) there are lots of tips there and also lots of experience, you can ask anything and someone will have dealt with similar usually.

Good luck, we had a very long recovery as my daughter had costoplasty too. The pre-op chat was one of the worst experiences of my life, they explained exactly what they do during the op.

You are welcome to PM me if you want. My daughters op was at the end of 2022, so I think I have forgotten lots of how it was.

Xx

cooldarkroom · 19/02/2025 21:07

Its a complex question because all scolioses are different & the procedures not identical. I believe there are more advanced less invasive operations now, ( at least in the USA ?)
My Dd had full Harrington rods (in France) so it was extreme.
She had a plaster/ then resin corset to allow her to grow first. if not the fusion stops growth of spine & the patient can be out of proportion.
They waited until she menstruated, as at that point they decided it was feasable. ( cartilage formed in hips etc.)
I admit I followed like a blind sheep,
Unfortunately her rods broke & she had removal & a repeat operation a few yrs later.
Then they broke again, & We found a surgeon who would repair rather than chisel out the whole length again ...this happened because the first 2 times the bone graft failed.
The third time they used a special sythetic graft mixture, ( from the USA, it costs mega bucks & we were lucky she was allocated a dose)
So, in retrospect, I I would want to know what procedure? What incision/s? what materials?, (Cobalt alliage is now banned in the EU as deemed corrosive)
Also what bone graft?
Have they checked her blood for anemia, (iron supps?) are they taking her blood (x weeks before) to auto infuse ? ( ideal)
There will be a need for transfusion
Do they advise taking collegen before to help healing/ scar?

On the day, she will go to pre op & it would be good to ask if she is first ? As if they say it takes 5 hours, it could well be alot more before you have news.
Go out, go for a walk/run..dont wait in her room all day, your mind will go into overdrive. it is terrifying.
Afterwards, will she go to reanimation, or back to her room.
Tell me shes not in a ward ?
When she comes round, she will be drugged on a morphine drip. Morphine makes my dd really unwell, so as she had this knowledge she had Ketamine the last time, so pain was controlled but she was away with the fairies (psychotic)
When they reduce the morphine day (2 or 3?) its brutal. My Dd suffered. It is hard to watch your child in pain, so be ready.
She wont want to eat. She wont be able to move alone.
Yes to braids. Hair band.
Nice smelling soap, to wash hands & face. Soft towel.
Take her headphones/music/ download some films. But she wont want a lot initially.
They will get her up with the physio probably the next day. & walking short distances on day 3.
My Dd came home after about 5 or 6 days. Then she had physio, nurse to change dressings at home.
Theres probably loads more Ive forgotten.
Remember they recover fast so the first days will soon pass
She should avoid any shocks until the bone graft has taken.. 6 weeks?
So jumping, running etc

cooldarkroom · 19/02/2025 21:13

Take a nice pillow, & pillow slips, (they may need to be thrown away later )not the plastic one from hospital, as the only thing you can do is try & make her comfortable

HollandC · 25/02/2025 23:08

Hi

I just wanted to reply as I have scoliosis and had spinal fusion when I was 16 and recent surgery at 50+.

And as a mum myself I can now recognise how my parents have felt watching their child go through major surgery I will say it was the correct decision and gave me many years of pain free life and was the best decision for me.

Please DM if you would like to talk.

Wishing you all the best and listen to the surgeons as they are amazing

SlaveToAGoldenRetriever · 05/03/2025 13:41

Hi OP! I know it’s late but I’ve just seen this thread. My DD had scoliosis surgery 3 years ago aged 17. Ironically I also happen to be a physio and worked with young scoliosis patients on the ward for many years

Hospital essentials for us:

  • Own blanket & pillows from home - much comfier than hospital ones!
  • A V/pregnancy pillow - really good for providing support, DD still loves hers and sleeps with it every night
  • Eye mask & ear plugs
  • Short button up PJs - Short ones are best to accommodate IVs and urinary catheter in the first few days. Button up is handy so she doesn’t have to lift her arms above her head
  • Any of your DD’s favourite snacks - she likely won’t have much of an appetite due to the medications so anything at all that might tempt her to eat is beneficial. DD lived off apples & grapes as they were the only things that didn’t make her feel sick. We brought a bottle of nice orange cordial and fruit juice boxes in with us to encourage her to drink and give her a bit of sugar to up her energy levels.
  • Quick & easy food for you! Microwave meals and instant porridge pots were really handy.
  • 3m long phone charging lead so that it reaches her bed
  • iPad/laptop for Netflix and movies etc
  • Good, supportive slippers (ideally with a back on them) or trainers for physio
  • Nice lip balm - DD’s lips were really dry after surgery
New posts on this thread. Refresh page
Swipe left for the next trending thread