Different username for this as may be identifying.
Has anyone had a similar experience and could suggest possible diagnoses that we might not have thought of? Sorry it's long. Trying not to leave anything potentially relevent out.
DD (age 11) has had nausea 24/7 for 4.5 months now, and has started getting daily headaches too. The nausea is at the top of her stomach. She can eat in general, but sometimes can only face a piece of fruit, other times she can eat more normally.
She has been trialled with gaviscon, lamprezole, anti nausea meds (antihistamine), all with no benefit, and just started an anti migraine tablet but will a few weeks before we know if it's making any difference. She has experienced loss of vision several times since September for a few seconds at a time (eyesight fine, neurological exam normal) Also has developed asthma in last few years (diagnosed by prescribing inhalers and seeing if they work.) and had pneumonia a few times. Also feels she gets a pins and needles and cold hands/feet a lot. Dr wasn't particularly interested in that symptom - said neuro exam was fine? (I was thinking circulation, but I'm not a Dr!)
She currently in a gluten-free, acid-reflux friendly diet which has reduced the severity of the nausea on the most part. (Celiac ruled out by blood test before she went gf)
Initially she was getting unwell every time she visited her dad - massive flare ups of eczema all over her body, nausea, headaches, and sometimes fever and vomiting (in a disproportionate number of times Vs when not with him). I tried everything I could think of to support her being able to visit (per her wishes) but also be well - advising on food, cleaning products etc that we used at home so I knew would be ok for her. Also asked him to check for mould etc. then I started providing what was supposed to be all the food, but good chance he was sneaking in some junk- the youngest told me a few times. ("Dont tell your mum!")
By September it was a half day visit and I provided all food, picnic style (again, good chance he also fed them something else too) but she still got intensely ill - probably the worst reaction she ever had. I'm so angry with myself for not stopping contact sooner but that would have been against their wishes so I was reluctant and didn't follow my gut. He's a manipulative man and I feared it could get worse in the long run.
Initially it was put down to anxiety - transfer test for high school, stuff with her dad, but I didn't feel it was, and stated so, but did arrange counselling for both kids. She didn't feel it was anxiety either. She swanned through the test and had an incredible mark despite being very unwell during both tests so much so she just went to bed after them rather than celebrate with friends.
She's had to give up swimming, gymnastics and performing arts school. She's barely making it to school 50% of the time.
For context :
Her younger sister also developed gastro issues, not as severe but was on medication. Now they have had no contact she was quickly able to stop all medication and I feel has been quite different personality wise, in a good way.
Her older sister (not same dad) has CFS/ME and something like POTS, but not yet diagnosed. She was 12 when it started, we feel it was triggered by HPV vaccine which stressed her system. She's pretty much housebound now and I'm here carer.
Dd11s symptoms are not identical but it does give me extra concern there may be some link.