My little one is 12 weeks old and has been a very unsettled baby since about 1 week old. Constant crying, unsettled and pain. He will cry uncontrollably and is rating 8 or 9 out of 10 on the FLACC pain scale every time (severe pain and discomfort). At about 6 weeks old he passed bright red blood in his stools and was put on CMPA formula and omeprazole for silent reflux. He was on Aptimil Pepti 1 for about 1.5 weeks and since then has been on Neocate and the maximum dose of omeprazole.
Last week he was admitted into hospital after passing 2 black tar like stools, they ran bloods , an ultrasound and X-ray and everything seems clear, but alongside the pain they are still wanting to investigate. Over the last 5 days his feeds have reduced dramatically, he was previously taking about 32 oz of milk in a 24 hour period (he is a big boy , born at 9lb6oz and currently over a stone now). He is only taking about 400-500ml a day now and the hospital aren’t overly concerned about this, he is still in an awful lot of pain, not feeding well and if he is awake he can give the occasional smile and be happy for a maximum of 30 minutes, then it’s like he’s in severe pain again and uncomfortable and inconsolable until he falls asleep, he is currently sleeping an awful lot (about 20 hours a day) which I know isn’t right but I know the pain isn’t there whilst he’s sleeping and with his lack of feeding he will be running low on energy. I am emotionally exhausted and am just lost as to what the answer to this is- the doctors are saying colic, CMPA , reflux, but he is on medications and the recent drop in feeding and black stool surely isn’t just colic?
please has anybody some sort of advice or similar situations to shed a little light (the doctors said to us “if you have any ideas from researching let us know”