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Missed Kawasaki disease?

1 reply

Fishsticks1999 · 27/01/2025 18:44

Hi forgive my anxiety but I recently became aware of Kawasaki disease only after my son was VERY sick with something last May while we were on vacation.

He had a fever for MANY days (peaked at 102 but hovered around 101-101.5 after that). He was sick with what seemed like a respiratory virus and he was 10 years old at the time. Kawasaki didn't cross my mind. No rashes were noted by me or my husband. He had red eyes but there was discharge which many resources say points away from Kawasaki. He had some minor peeling on his finger but only after he was already feeling better. He was prone to patches like that when playing on his computer or drawing so we didn't think to be concerned. He was recovering and that's what we wanted to focus on.

Now I'm seeing horror stories about undiagnosed "incomplete" Kawasaki and those kids having heart issues. I'm absolutely gutted right now. I didn't think it was possible. What am I meant to do now? Would our doctor take this seriously after the fact? I've seen several stories in this forum alone that kids that didn't get diagnosed in time have heart aneurysms. It didn't even sound like a rare complication.

We contacted a telehealth nurse during the vacation after he hit through 5 day fever mark and she didn't tell us to take him in. She called in a script for antibiotics if the fever didn't break. We thought we were doing the right thing keeping him home and not exposing anyone to this nasty illness. My husband got sick a few days after him so it felt wrong to spread it and now I'm feeling like it was a dangerous mistake that I can't reverse.

What would you do and does anyone know if these aneurysms are manageable?

Thank you.

OP posts:
Unseenentity · 27/01/2025 19:52

I think it will be impossible to diagnose KD reliably in retrospect. Aspects of what you've written sound non-UK so not sure how much this would relate to how you access medical services. However I think if you took that story to a UK GP expressing that history with those concerns they would refer you to a hospital team who would try to prioritise you for an echocardiogram to see if aneurysms did/didn't develop.

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