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Original poster

14 year old pain everyday

9 replies

Sezza123123 · 14/01/2025 07:35

Hi, has anyone been through this and can offer any advice my daughter had an ovarian cyst which ruptured around 4 months ago and since then she has a tender bladder and pain under her belly button and sometimes on her back, she has had all blood tests all ok and been treated for uti's as well, she is on an urgent referral list for gynaecology but this could take months, she is in pain everyday with this painkillers don't seem to work she is struggling at school with pain as she has to wear her skirt with tights and shorts under which pressing more on her bladder (she won't wear school pants she is on sen register at school and ASD pathway she has sensory issues with some materials etc) I just don't know what to do for her?

OP posts:
PreferMyAnimals · 14/01/2025 07:41

Would you be able to get a private referral to be seen faster?

Original poster
Sezza123123 · 14/01/2025 08:08

I'm not sure we can afford it to be honest unfortunately.

OP posts:
PreferMyAnimals · 14/01/2025 08:11

Without wanting to sound insensitive to financial difficulties, if she's in that much pain for that long, you need to find a way to afford it. She can't go months without being seen.

Original poster
Sezza123123 · 14/01/2025 08:19

If I could afford it I would but unfortunately I can not afford it especially if she needs further treatment afterwards aswell etc

OP posts:
Floralsofa · 14/01/2025 08:27

Sezza123123 · 14/01/2025 07:35

Hi, has anyone been through this and can offer any advice my daughter had an ovarian cyst which ruptured around 4 months ago and since then she has a tender bladder and pain under her belly button and sometimes on her back, she has had all blood tests all ok and been treated for uti's as well, she is on an urgent referral list for gynaecology but this could take months, she is in pain everyday with this painkillers don't seem to work she is struggling at school with pain as she has to wear her skirt with tights and shorts under which pressing more on her bladder (she won't wear school pants she is on sen register at school and ASD pathway she has sensory issues with some materials etc) I just don't know what to do for her?

Hopefully the referral doesn't take too long, I had a non-urgent gynae referral start of December and have an appointment end of this month, seems to vary wildly by area.

Winter2020 · 14/01/2025 08:42

If she is in significant pain that she is finding it hard to tolerate at any point I would take her to A&E and advocate for her.

After failing to get any help or tests for our son through our GP and a paediatrician referral it was on the second visit to A&E (because of significant pain) that we managed to get the ball rolling on the path to him being diagnosed with Crohn's. A&E did blood tests that showed things were not right and in the morning after a night in A&E transferred us to paediatric gastroenterology who made the neccessary referrals.

I guess what I am saying is if you feel that her symptoms are urgent then push hard.

I have no regrets- I was at the point of being afraid my desperately underweight son would die of heart failure. The GP or paediatrician could easily have ordered a stool calprotectin test (which I didn't know existed at the time) or an endoscopy and that would have avoided us having to go to A&E but didn't.

fivebyfivebuffy · 14/01/2025 08:50

PreferMyAnimals · 14/01/2025 08:11

Without wanting to sound insensitive to financial difficulties, if she's in that much pain for that long, you need to find a way to afford it. She can't go months without being seen.

They might not do it privately
I was originally sent to spire via NHS and they won't touch me as it needs 2 surgeons and a specialist centre
Gynae waits are horrendous, around 12-18 months, I've been in a&e numerous times and on morphine most days but they have emergencies ahead of me

Original poster
Sezza123123 · 14/01/2025 18:39

Thank you everyone I have taken her back to the GP a few times as she is just in pain it's making it worse at the moment in school as she has to have tights and shorts under skirt it's too tight and school have said she can't just wear leggings which are comfier for her (they said she can wear skirt over leggings but she can't do this she said as it doesn't feel right)

OP posts:
indecisivewoman81 · 15/01/2025 07:46

Would do 2 things;
First go back to the GP and ask for a doctors notes that specifies your daughter needs leggings not shorts and tights to help with the bladder pain.

Second. The next time it is bad i would go to A&E and not move. Insist on scans and pain management. I know that's awful but this is your kid and she needs you to advocate for her loudly.

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