Unable to empty bladder

[ValueFamily]

New here. My daughter, over the last few months, has been struggling to empty her bladder / go at all fully. She has been catheterised a few times now in the hospital, but nobody can say why this keeps happening all of a sudden! She has also started to have wetting accidents and seems to go from being unable to hold to being unable to wee. She has also had five urine or kidney infections in the last 3 months. Is anyone able to point us in a direction for help or guidance? She has also started to have seizures and is being investigated for a neurological condition

Has she been referred to a Urologist?

She has we have seen them we are just waiting for a voiding cystourethrogram (VCUG) test which is in January

Hi, my daughter had this and it was all because she was constipated. Once we managed her constipation she was able to empty her bladder fully.

I agree that constipation is probably the most common reason for this, but rather hope that's been considered by now!

Thank you she does take lives daily and has a poo once every 2-3 days at the moment. On one occasion, she was pretty constipated They gave her an enema to clean, but she didn't manage to wee. However on other occasions she has had a poo and had managed to wee

What does she take daily? It may be worth changing it to try and get her to go daily and see if that helps with the emptying of bladder fully

One poo every 2-3 days isn't enough but one of the problems you'll have is how silo'd our health service is.

I'd recommend you have a really good look at ERIC website & listen to their podcasts/all their materials about constipation and also Bowel Bladder UK (I think that's what it's called).

She probs needs macrogol - movicol/laxido to clear out her bowel.

You can ask for a referral to children's continence service - the continence nurses are the real experts. Nobody tells you this & most gp's are not very clued up despite telling you they are.

Good luck xx

She takes movicol 4 times a day, she also takes omeprazole and ondansetron. She also has rectal tablets she takes when she gets horrific cramps. All her meds were looked at by the GP pharmacy in October

That really sounds like the constipation is undertreated. It would be well worth attacking that properly, and seeing if it helps the waterworks. Need to start with a disimpaction regime (exact regime varies by age, but involves steadily increasing movicol until poo is like gravy, then keeping like that for several days of lots of gravy like stool) and only after that dropping back down to a maintenance dose, which is whatever amount it takes for daily passage of soft squidgy poo. Definitely have a look on www.eric.org.uk

@nocoolnamesleft thank you! Her poo is never like gravy! Mostly always pebbles we use an app PCAL to track her movements. Ill get on to the GP on Monday and chase them for a better treatment x

Not sure how old your DD is, but have you looked at Fowler’s syndrome?

Oh thank you Ill have a look now! She is 13