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To Those With RSV Experience (be kind!)

8 replies

Charus19 · 12/11/2024 08:14

Hi all. My little boy (age 3) was admitted to hospital on Saturday night with constant coughing and vomiting from the coughing. This was his second admission in 2 weeks, as he'd only just been sent home a few days prior aftwr recovering from what they thought was walking pneumonia (his X-ray was clear but they treated as such).

He'd recovered ok, and then 2 days later after being home a dry continuous cough started. By the Saturday it was constant, and he was also developing a fever. We saw an out of hours GP (I was obviously worried seeing as he'd JUST gotten over this walking pneumonia), but she was very dismissive. Made me feel like an idiot and said go home his chest is clear.

Well on the Saturday evening he coughed so much in his sleep that he vomited so much all over his bed. We went to a&e who said they could hear faint crackles in the lower left lung, and ordered bloods and a chest X-ray.

Chest X-ray was clear, bloods were non remarkable. He was admitted for the high temperature, crackles, and vomiting. He got swabbed for rsv, flu and covid on admission, and then a few hours later the nurse said he'd come back positive for RSV (most likely picked up whilst in the ward the week before). By this time his nose was full of congestion.

We've been in hospital ever since (3 nights), and today the consultant says he can go home with recovery at home to take at least 2 weeks. They're going to phone us on Thursday to check him.

Whilst in, his oxygen SATS overnight when asleep have dipped to 89 at times. They've hovered at around 92/94 most nights. The nurses don't seem to be bothered and I've told his consultant every morning and she said it's to be expected to dip, as long as it doesn't remain low for a period of time. In the day his oxygen SATS are always 95+. He's not pulling in at the ribs anymore, he's not having high fevers anymore (although is having regular paracetamol and ibuprofen), he's eating and drinking.

Today we have to go home and I'm terrfied. I think this may be the 5th day of the infection so I am worried the worst is still to come. I'm also scared he'll get a chest infection / pneumonia again and he'll need antibiotics. I keep asking for antibiotics and they keep saying no - Even though his chest sounds crackly. The X-ray on Saturday night was apparently clear again. The bloods were apparently fine on Saturday night (when admitted).

Last night he had a coughing episode and it went on and on and was actually so scary for me. When he sleeps I can hear Rice Krispies type noises and that scares me too. I don't want to be at home and panicking and wondering when or if I should bring him to a&e.

Like I said when he's awake he seems ok in himself now, but he SOUNDS bad. And I get so scared of that.

What am I looking out for at home? How do I know whether he's getting pneumonia? How do I know if he needs antibiotics? I hate battling with the drs when they say no he doesn't need them. Is he likely to now get worse and then better? We're on day 5 today. How did you manage your anxiety at home when caring for them through this? How long did they take to get well?

Sorry for the long post. Im exhausted, drained and worried sick. It's been a total of 13/14 days of non stop worrying and lack of sleep what with the cold, walking pneumonia, and now the RSV. I really want him to just get well.

OP posts:
Charus19 · 12/11/2024 08:18

Edit - the cough is no longer dry sounding. it sounds like he smokes 50
a day!

OP posts:
AuntieKraker · 12/11/2024 08:31

DS3 and DS1 have had numerous episodes of this, some minor, some very serious. It’s normal for oxygen to be lower at night, and 92 does seem to be the level they’re happy for it to go down to. Personally I think it’s low but as long as it’s consistently at 92 and above, they accept that.

A crackly chest and wet cough isn’t actually a sign of needing antibiotics. I think it used to be which is probably why you’re asking for it (and why DS3 had several courses before he even turned 1) but the cough does usually clear up on its own. They only look at antibiotics if it’s been 2-3 weeks and there’s no improvement. RSV is viral, not bacterial, and if there’s no reason for them to think there’s a secondary bacterial infection, then they won’t issue antibiotics.

It does sound like he is very much on the mend, despite the coughing being bad. No pulling in and eating and drinking is absolutely ideal and that plus consistent levels of oxygen would be the point where I would expect to be discharged. But I know none of that will address your anxiety! In terms of what to look for, pulling in again is usually key. I’d be massively surprised if that happens again as it sounds like he’s through the worst of it, so with the full caveat that I’m not a doctor but a mum to two small children who have had this more times than I can count, I think he’s fine.

Both my children were very seriously unwell the first time they had an episode and it left me quite traumatised to go through that experience, so try and look after yourself too so you can recover from physical exhaustion and the mental stress too. But honestly, I think he’ll be ok!

Kosenrufugirl · 12/11/2024 08:48

Hi there my little one was admitted at 11 months via ambulance for RSV. Thankfully my friend came over for a visit and it was her suggestion to call an ambulance. I had been to the GP a day earlier and i was told there was nothing to worry about, just a cold. My little one didn't seem any worse the following day. Which is why I was in shock when the paramedics immediately started him on oxygen and salbutamol before transferring us to hospital. We stayed for 2 nights I believe. We were readmitted 2 weeks later. The Consultant said "It's a good thing that you came much sooner compared to the last time". (I did made a complaint about the GP). Unfortunately we had a few more admissions over the next few years. I had to accept the steroid inhaler at some point. He is a teenager now but still gets wheezy when he has a cold However nowhere near as bad compared to when he was little. My suggestion to you would be to go home and observe closely. Bring him back if you are still worried. I do believe the longer you stay in hospital the more likely you are to get another bug. I hope it helps

Mumoftwo2022 · 12/11/2024 21:37

If consultants say you are ok to go home they must be pretty confident he is on the mend. Do you have an oxygen monitor at home I found that helped my anxiety checking that every so often

TiredTuftyTeddy · 12/11/2024 22:10

My DS was admitted a few times for episodes of RSV and bronchitis. It was absolutely awful, and although it's exhausting being in hospital is the absolute best place.

My DS was coughing, and ribs sucking in and just really ill.

Don't be hard on yourself, kids pick up all sorts all of the time. Try and rest as much as you possibly can. It will pass, but when you are so sleep deprived it feels never ending. Can you tag out and swap with dad for a night or two whilst he is being observed in hospital. I know not everyone has this luxury but if you can, please do.

I hope your little one feels better soon xxxx

Antihistamine62 · 19/11/2024 20:40

My baby got it at 3 weeks old and was very ill. We had a long stay including a stint in picu. When we got home I remember being relieved but the moment I walked through the door I was terrified. What if I missed something etc. it will take a while for the anxiety to calm (not sure if mine has yet as I go to shit anytime any of them are ill) but mothers instinct isn’t normally wrong. You’ll know if he needs more help. Be kind to yourself x

AuntieKraker · 19/11/2024 20:55

AuntieKraker · 12/11/2024 08:31

DS3 and DS1 have had numerous episodes of this, some minor, some very serious. It’s normal for oxygen to be lower at night, and 92 does seem to be the level they’re happy for it to go down to. Personally I think it’s low but as long as it’s consistently at 92 and above, they accept that.

A crackly chest and wet cough isn’t actually a sign of needing antibiotics. I think it used to be which is probably why you’re asking for it (and why DS3 had several courses before he even turned 1) but the cough does usually clear up on its own. They only look at antibiotics if it’s been 2-3 weeks and there’s no improvement. RSV is viral, not bacterial, and if there’s no reason for them to think there’s a secondary bacterial infection, then they won’t issue antibiotics.

It does sound like he is very much on the mend, despite the coughing being bad. No pulling in and eating and drinking is absolutely ideal and that plus consistent levels of oxygen would be the point where I would expect to be discharged. But I know none of that will address your anxiety! In terms of what to look for, pulling in again is usually key. I’d be massively surprised if that happens again as it sounds like he’s through the worst of it, so with the full caveat that I’m not a doctor but a mum to two small children who have had this more times than I can count, I think he’s fine.

Both my children were very seriously unwell the first time they had an episode and it left me quite traumatised to go through that experience, so try and look after yourself too so you can recover from physical exhaustion and the mental stress too. But honestly, I think he’ll be ok!

Oh gosh. I wrote this post just last week and had forgotten about it.

Right now, DS2 is in hospital in the high dependency unit after he caught RSV again…

Charus19 · 28/11/2024 18:10

AuntieKraker · 19/11/2024 20:55

Oh gosh. I wrote this post just last week and had forgotten about it.

Right now, DS2 is in hospital in the high dependency unit after he caught RSV again…

Oh gosh I'm so so sorry. How is he now? It's terrifying - I am constantly living in fear. My little boy has been home 2 weeks and his sister has had a cold and cough, and despite me trying to keep her away from him.. he now has it too. Every cough sends my adrenaline sky high.. and I'm praying he doesn't get worse. It's so scary.

thinking of you and your little one x

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