Hi,
We discovered my 2.5 year olds chronic diarrhoea was actually overflow - consultant missed it saying it was toddler diarrhoea! Since then have been under bladder and bowel team (B&B team) who helped to disempact him - with Laxido and sodium picosulphate. He has been on both for about a year. B&B team have basically dropped us as no regular contact or real support just say to try and reduce both drugs ourselves.
I've reduced the dose to 1 laxido a day and less than 2.5 of sodium picosulhate. I'm really paranoid he'll get constipated again and disempacting him was a nightmare for him too, BUT he is constantly complaining of tummy pain, especially around meal times. His behaviour has become more challenging! He's very reluctant to eat normal food other than sweet snack foods - it's a challenge to get him to sit and eat any kind of meal although he does eat some healthy foods if forced. When he does go on the toilet he has lots of wind++ and still a very wet poo which isn't really formed. He is going every day though.
I'm thinking his digestive track is worn out he needs probiotics etc and wondering if anyone has had similar experience? I'm concerned that he's just been left taking this medication at 4 years old - I've tried speaking to nhs about this but get no where. I'd happily go private but don't know where to start.