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Children's health

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Disproportionate growth

6 replies

Moonsandspoons · 24/07/2024 21:12

Worried about my LOs growth and a few other things. He is near 22 months now. He was 40% height, 50% head circumference at 1 mo and now he is 23% height, 76% head circumference.

Ive posted on another thread as worried about a brain tumour (he had been vomitting every 48 hrs since last Thursday and started squinting, also seems like he has headaches but I can't tell for sure).

Waiting to see a paed (just had a referral) about it but it would help to know if anyone is similar?

OP posts:
minipie · 24/07/2024 22:29

How long is the wait to see a paediatrician do you know?

If it’s a long wait I’d be tempted to go to A&E to try to skip the wait, mention the head size, vomiting, squint, possible headaches. I know that’s not what A&E is supposed to be for before I get jumped on by others, but wouldn’t want a long wait just in case this is something that does need urgent treatment. Hopefully it isn’t but just to rule it out.

Fingers crossed you get seen soon and all is well with your little boy.

Moonsandspoons · 24/07/2024 23:07

minipie · 24/07/2024 22:29

How long is the wait to see a paediatrician do you know?

If it’s a long wait I’d be tempted to go to A&E to try to skip the wait, mention the head size, vomiting, squint, possible headaches. I know that’s not what A&E is supposed to be for before I get jumped on by others, but wouldn’t want a long wait just in case this is something that does need urgent treatment. Hopefully it isn’t but just to rule it out.

Fingers crossed you get seen soon and all is well with your little boy.

I don't but I doubt it was an urgent referral. GP wasn't concerned about the tumour saying that he looks a very healthy boy. He sort of just shrugged the other stuff off.

My problem is that everything is being dismissed as my anxiety and I also get flustered at the appointments so didn't ask how long and why it wasn't concertina

OP posts:
BlackSwan · 25/07/2024 08:16

Baby signs and symptoms - Better safe than tumour

Mum of kid who had a brain tumour here. Regardless of how rare tumours are, you're absolutely right to follow up on red flags. It's ridiculous of a GP to just say your boy looks healthy and dismiss you like that. I hope this guidance from the Brain Tumour Charity helps arm you for your next discussion. Fingers crossed he spontaneously improves.

Baby signs and symptoms - Better safe than tumour

Read about the signs and symptoms that affect babies with a brain tumour. If your baby experiences any of these, better safe than tumour.

https://bettersafethantumour.com/babies/

minipie · 25/07/2024 08:44

I agree the GP sounds dismissive. Unfortunately I think they see a lot of anxious first time mums and can be a bit dismissive especially if it’s something fairly rare you are worried about. (Happened to me and I turned out to be right, had to go private in the end). You sound very rational though and have solid facts so keep pushing, can you see a different GP and ask for the referral to be made urgent?

Moonsandspoons · 25/07/2024 17:38

@minipie , @BlackSwan thank you for taking time to reply and your words of support. I am so so sorry that you had to experience this. Only after I became a mum I could understand the anguish any serious health problem in a child would bring.

I am extremely anxious, and have a history of making things into symptoms where there might be nothing sinister so I think I could be a boy who cried a wolf.

However, I just cannot shake off the garden facts - the growth numbers (he was measured and weighed at hospital so I assume these are accurate), the strange on and off vomitting (currently nearing 48 hrs vomitting free), him pressing in his eyes a lot, and he just feels less energetic. (Thr latter two I don't know whether I might be imagining or not. He is normally at 150% speed and now just wants to watch cartoons and not into his normal play as much).

I know I have a problem with anxiety so it I'd hard for me to tell if I am being rational or someone is gaslighted me or whether people /professiinals have the reason to think there is no reason for concern. It's a mind***k.

Tbh, usually my GPs are great but they made me really upset when I went with my son about my concerns so I don't want to call them to be put through another long questioning about my mental health. I have booked a private paed for the next week.

OP posts:
BlackSwan · 26/07/2024 10:19

It's important to try to channel your anxiety into being heard over your legitimate concerns. If the drs become distracted by your mental health, that may undermine the focus on your child's health. Focus on the facts and whether the explanations you're given actually make sense. If they don't, keep pushing.

I don't underestimate how challenging that is. I've experienced it myself. Whether or not there is anything sinister underlying the symptoms, it's important to get to the bottom of it.

I'm sure that doctors thought I was a loon when I kept taking my DS back and pressing for answers (between the ages of 1 and 3.5!), I was given all kinds of crap explanations which didn't make sense to me, for instance: "common things happen commonly/there's fine print stuff it could be but they're very rare" (er, what? how is that scientific).

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