Vulva vaginitis in my 2 and half year old

[Sh33tuC87]

I am going insane with this!!!!

Initially we thought our daughter kept getting UTIS and kept taking her to the dr for it. The screams when she would go to the loo were triggering for me and I couldn't cope with it. Every-time we went the drs would look at me funny and say "oh it's probably nothing." Finally we took her to urgent care (trice) and a dr mentioned that the previous sample came back negative and what she could be suffering with is vulva vaginitis! I mean wtf is that even? She didn't really explain it to me - just said to ride it out.
Ride it out.... how on earth do you get a 2 and half year old to ride it out!!! She is beginning to be petrified of going for a wee and will refuse to drink water because she is scared it is going to cause a sensation.
Things we do are:

• wash with water after any form of urination or poop
• sudocreme
• toilet trained day and night
• only drinks water lots of it too
• cranberry juice daily
• loose clothing
• showers only
• she can wipe from front to back but we often revert to wiping her ourselves
• make her come off the toilet and go back on to make sure she is completely empty.
• childminders use cotton wool and water to clean her

Like I don't know what else I can do?
When people have asked for this to be investigated further - how have they gone about it? What have the drs said?
Sorry very frustrated and just really heartbreaking watching her go through this.

I’m aware it’s not a full article …it doesn’t say that those chosen had a suspected allergy to Sudocrem only that it was 18 out of 26 consecutive patients with Allergic contact dermatitis ,that showed a reaction to Sudocrem….. this is a relevant article because the op’s daughter clearly is showing an ongoing problem. As I said upthread , I and my daughters all react negatively to Sudocrem ,which is a brand that has cornered the market advertising wise when there are lots of other products available. If you have a child with skin sensitivity you find that a number of well used products cause adverse effects for a significant minority…E45 is another culprit. It really isn’t unlikely!

urine tests are so unreliable at picking up UTIs - I'd argue for the dr to perscribe antibiotics anyawy. I've had to do that for my both my daughters when urine samples have been clear, and the antibiotics has cleared up the issue.

"Wash with very mild or no soap "

Definitely no soap for washing. Water only. Then whatever is prescribed, or sudocrem.

So hard when you're trying to get sudo crème off her with just water

Absolutely! It is what I have had to do too. But because of how frequently she gets it, now my drs are looking at me in that way, as if I'm making up illnesses, because the tests come back negative! 😭

@dantewest I don't belive she is allergic to Sudo crème as she has been using it since birth!

It is defo a something else that she gets and when I do put Sudo on it helps relieve her a lot. But I will ask the drs for a more stronger barrier cream and swab her for thrush.

@Greatmate someone else suggested bicarbonate baths - how much bicarbonate do you put in? There was also a suggestion of salt baths - would I use Epsom salt? Or normal salt?

We used epaderm as a barrier and bicarb baths. It was quite a lot of bicarbonate of soda we added, about 4 dessert spoons. No bubble bath, but perhaps also consider a shower rather than a bath so the shampoo etc isn't in the water she is sitting in. Or wash her hair at the end.

Edit to add, also consider whether your washing powder/ liquid might be irritating her. I have the same issue myself and it's usually caused by laundry detergents and toilet roll. We're now using washing balls from ecozone, and unbleached loo roll from ecoleaf.

she may well not be but sometimes its worth looking again with fresh eyes,speaking as someone with kids with sensitive skin and myself, some people can use a product for ages and then again start reacting. We have had this a lot with my kids and various products suitable for eczema. With irritation issues it's really challenging as something can set the itching off and then they start to react to anything put on the area.,,,its a bit like the nerves become super sensitised and its actually a horrible sensation as an adult never mind a child. As the pp also said, washing powder can be a common culprit. We used to use oat baths to help the itch but everyone is different.

It depends how much water you put in the bath. I personally would only put a few tablespoons 3/4. Just let her sit it for 10mins. Your don't need to do more than that so no scrubbing or douching. Don't let her drink the water, kids do odd things, also rinse her down after with plain water. Pat dry and cream the skin, not vagina, after because it can be drying.

If it only hurting when she urinates I would suspect uti. The lipstick and culture tests for uti are notoriously unreliable so a negative test doesn't mean she doesn't have one. GP's are not always up to date on this though. There is more info here https://cutic.co.uk/

Also I would be cautious about using topical thrush treatments and this can cause vulvodynia in some people.

Luckily I managed to speak to her Peads dr - she's under monitoring for her asthma - and this dr initially referred us for a scan in regard to the earlier episodes of UTI. Literally an hr later of speaking to her we have an appointment in August with the Urology team for her. 🙌🏾🙌🏾🙌🏾🙌🏾🙌🏾

Congratulations on the referral.

If it does turn out to be vulva vaginitis, it’s common in our house and as a result of this we can’t have soapy products any where near our downstairs. When we’ve had episodes we rub natural yoghurt down there, it provides instant relief and the following day the inflicted party is always pain free.

That's great news

Glad you have a referral
With us, it was always thread worm! Do look out for it as that's always a potential in kids and symptoms practically identical. You will know if it is as once you all take the ovex, symptoms disappear

Hi sorry not rtft bit reflexology helped me massively after I had nerve issues in my vulvaflowong several kidney infections . It was so painful to wee I was trying not to scream
anyway reflexology on the feet did unblock something in the nerve and it went immediarelt
worth a try I hope ..