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Children's health

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Sleep apnoea?

29 replies

Madmussells · 16/03/2024 12:26

Hi all, I've posted before about my emotional, grumpy, very tired looking 5 year old son. I'd really like some advice on what to say to the Dr on Monday.

Ds is not napping at school and he does run around, but lies down quickly complaining hes tired and cant keep up with other boys even though he's average to tall.

He's had blood tests that show nothing really bad (luckily) although his ferritin was only 20 which some say is borderline, and very low blood sugar despite having had breakfast.

The Dr said he would redo blood tests in 3 months (around now) but wouldn't refer or do anything else unless school writes to say it is affecting him at school.

He's a bright boy so not really affecting him academically but they say he's anxious and have signed him up for ELSA. Teacher is happy to write to Dr as they say it's always worse at home. I've often got a bruise from one of his meltdowns. I don't get cross, I know he can't help it and he's so embarrassed afterwards.

Now Im wondering about Apnoea. He's always snored. He always wakes in the night 2-3 times (not good for anyone). In January I had a video of him pausing breath for about 10s in his sleep but my phone got stolen and I lost the video. I've been trying to get another one but no more Apnoea, just HORRIBLE breathing (which I've videoed) - sucking in stomach, ribs, neck and half-waking about 3 times a minute at some points. But he seems to be able to sleep okay sometimes on his side.

I did mention this to the Dr last year who was quite dismissive as it is not constant. But it is every night for a good chunk of time! He said to maybe get a nasal spray? Perhaps allergies or a cold. But DS has had this his whole life. He looks soooo tired despite sleeping from 7.30- 7am every night.

Please does anyone have any advice?

OP posts:
Madmussells · 18/03/2024 17:05

Saw the Dr today. I don't think he could see/hear my videos because my phones broken and the kids were bouncing around (DS showing obviously that he's not tired at all!)

He has said he's sending him for a Pediatric Review to see if needs ENT. What is Pediatric review- does anyone know please?

OP posts:
blackbirdsinginginthenight · 31/03/2024 22:34

No my ds was thin, but not small for his age. There's been a big difference in his appetite since though, he never stops eating

Madmussells · 01/04/2024 00:19

blackbirdsinginginthenight · 31/03/2024 22:34

No my ds was thin, but not small for his age. There's been a big difference in his appetite since though, he never stops eating

I'm not sure if my son is thin or not. He's got a huge rib cage so has always looked a bit like a rugby player but he's not fat at all (although has a puffy face).

I'm so worried about him. Even my husband is now and he never is. I can hear DS right now: snoring, struggling to catch his breath and then coughing. He comes to wake me 2 or 3 times most nights with nightmares.

I need to find a private consultant. Do I have to be referred by my GP or can I just book to see them?

OP posts:
Garman · 01/04/2024 09:42

Google ENT consultants near you and see if you can book them yourself or need gp referral.

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