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Children's health

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Juvenile arthritis and possibly something else?

1 reply

27Rosie16 · 25/01/2024 17:14

My 9 year old daughter was diagnosed with juvenile arthritis back in 2020, she hasn't had any active flares for 3 years but she is still in constant pain, she wakes up stiff and sore and nearly always has pains in her legs and knees and sometimes hips. She's currently having issues with the bottom of her foot and we've changed shoes and bought insoles for extra support. We see rheumatology every 4 months but they seem to think she's just sensitive to pain. GPs seem to point us back to rheumatology and rheumatology don't seem that interested. Is there anything I can do to help relieve some of this pain or can anyone recommend different shoes to support her? It's really affecting her mental health and I will be taking her back to the GP as soon as she is given an appointment and I will mention all this to rheumatology again when we see them. She takes regular ibuprofen as rheumatology have suggested.
Thanks.

OP posts:
SpideyVerse · 25/01/2024 18:37

So very sorry to hear of the pain your daughter is enduring.

With regards to your plea about her feet...
Have you considered it might be Bone Spurs/Plantar Fasciitis under foot?

For context, I too had juvenile arthritis at your daughter's age,
and periods of what I now realise was plantar fasciitis coming to a head after a summer of sport-camp on tarmac.
The foot issue returned as an adult after pregnancy - gradually and sporadically until it was literally crippling years later and the penny finally dropped about the cause then, and back in my childhood. After gruelling, extensive trial+error of inumerous footwear and insoles, I finally discovered rocker-sole style shoes (such as "Fitflops" which come in everything smart to casual) to be an absolute godsend, and indeed the ONLY thing that radically all-but eradicates the pain with continued use.
I'd recommend that if she does certain sports, striving to invest in activity-specific sneakers for her (tennis/hockey/basketball/etc as well as different court surfaces all cause different demands on the foot)... then change into her Fitfops at all other times.

Hope this is of some help. x

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