Coeliac and Crohn's: what were your child's symptoms?

[OneSmallPieceOfCheese]

Hello all
My daughter is 10 and is awaiting a endoscopy to find out if she has coeliac or Crohn's (or neither... or something else). I like to be as prepared as possible so I'm trying to research both. So my question is, if your child has either condition, what symptoms do they have? Especially the less documented ones. Her main symptom is constant pain behind her belly button.
Thanks in advance... I'm hoping to get my head around the possible outcome so I'm not blindsided by it, whatever it is.

Ah, I see. It's a steep learning curve, isn't it. My daughter has been GF for a year to see if it helped (it helped reduce it, but pain still there) but now she's got to start on gluten again ready for the endoscopy. So far it has not been fun for her 😥So clearly gluten is a problem but if she is coeliac then either there's something else going on, or we were not being strict enough with the GF diet.

Has anyone had to reintroduce gluten to their child's diet? If yes, how did you do it (and how did it go)?

It seems to be on and off, but definitely most days. It may be that we don't hear about it when playing as distracted.

I had to reintroduce gluten to my diet. It gave me a lot of stomach ache, gas, upset stomach. Still does if I have too much. If you've got time, go slowly and build it up. Not sure when your endoscopy is?

6 weeks away so we are starting on barley malt, and will introduce more gluten containing foods as we go along. Just barley malt is bad enough.

I wonder whether people who are gluten intolerant react to barley malt in the same way as coeliacs do?

Some people have a barley allergy but not wheat, can you try wheat products instead?

Given the way she used to react to Weetabix, I'm thinking that barley is probably the lesser of two evils....