Hello everyone, I am new here. I was looking online for a forum or a place where I can connect with other moms.
I don’t really have many people I can talk to or open up with. My two-year-old son was just prescribed glasses. I personally feel so sad because I never thought that this would be something he would need at such a young age, I am concerned about the future of his eyesight.
I wish it was only glasses, but this whole thing started with strabismus (he turns one eye inward since birth) I read a lot about this, I wasn’t too concerned at first because I thought it would be something easy to address later on if needed.
His doctor suggested that we waited until his first year of age before checking that situation out further, she told me a lot of babies grow out of this on their own.
But since he is already two years old, I took him to a specialist, and I was told that he has what seems to be “morning glory syndrome” in both eyes, the ophthalmologist tells me that it is very rare to see this condition in both eyes, she also explained to me that his left eye seems to be more deteriorated, she believes he has some abnormalities related to the blood vessels that connect the eye to the brain. She can’t confirm this 100% without the MRI scan. However, she seems pretty confident in what she says.
She suggested an MRI to check for moyamoya disease, I don’t know if anyone on here has had any experience with any of this, but I am a wreck. Based on what I’ve been reading and researching, moyamoya disease is pretty much an issue of the brain, if this turns out to be my baby’s diagnosis, then that would mean his eyes are not correctly receiving blood from the brain. I am trying to hang in there until it’s time to take him to his MRI appointment
I have read so much about all of this and I feel a bit more calm when I think about the fact that science has addressed these issues many times already, which gives me hope that things will work out in case he is diagnosed with this disease and ends up needing surgery.
If he ends up not having moyamoya disease, which I hope, I know he will definitely need some sort of surgery to help with his strabismus, to my understanding, this is a minor procedure. But I am so sad and scared because both the optometrist who prescribed him glasses and the ophthalmologist who told me about the possibility of moyamoya disease/morning glory syndrome in his eyes told me that he might (or might not) lose his vision on the weaker eye. The uncertainty is really affecting me.
He was prescribed glasses, because his left eye apparently isn’t strong enough and the optometrist believes he might be having issues with seeing correctly from that eye, I am sorry if I am rambling on, but I wanted to give as much detail as possible in case anyone has had any similar experience to any of this.
My baby has given me so many scares, he was born with an arrhythmia, and that was a very scary episode whe was a newborn, he has had some issues with gaining weight, so I am always worrying about him, and now this…
He has finally began to put on some weight, his appetite is so much better, I felt so happy that we were finally making some progress with his growth and now with this situation with his eyes, I am back to being a depressed mess.
Please, please share with me your opinions or experiences if you can. It would truly help.
BoyMomx2