Reasons for brain damage

[brainhelp]

Hi

My daughter had a difficult birth and had an MRI where it was shown she has brain damage.

They initially put this down as due to prematurity and needing resuscitation at birth.

However, we saw a specialist who said her brain injury isn't typical of a premature injury as the anterior part of the brain has more significant white matter loss than the posterial occipital part of the brain. Her white matter volume is generally reduced

Does anyone know what could cause this?
I was asked if I'd done drugs, drank or took medications which I definitely did not do when pregnant. Her twin is also perfectly fine.

Thanks :)

Only the doctors who know your case can give you answers for this. Not some random people on the internet...
Ask medical professionals, don't rely on the internet.

Hi,

I understand this. I didn't want a definitive answer. The doctors do not know so I wondered if people could guide me in the right direction as my reading is proving futile.

What did the specialists say then? Just that they don't know?

Currently yes due to it being 'atypical'

It could be as random and not getting enough of the right nutrients at the key time for that bit of brain development. Perhaps she has a rare genetic or even non-genetic disorder.

Doctors don't always immediately know the answer but will. Re asking about drugs/drink they are only trying to get a full picture of pregnancy (they are not accusing you of anything) as full pregnancy/birth history helps them figure out what is happening

Sorry the replies haven't been great so far.

I'm so sorry to hear you've had this mews, you must be devastated.

Do they know how much it will affect her development yet?

I don't know the reason for this but may e someone else will come along with an idea. I can see why you've posted, you must be beside yourself.

My friend was convinced her daughter had something amiss as a baby. She kept insisting all was not the same as her previous child. The doctors insisted her daughter was fine. Then they diagnosed her with a rare genetic disorder but couldn't tell her more, eventually she was given a label. It was not genetic but is very, very rare. And random. My friend was devastated by the diagnosis but at least with a name came support groups, expectations and a plan for the future (of sorts).

I presume that's where you're at: wanting to know what to expect and what you can do. I am sorry for what you're facing. My friend found it very harrowing but much better since she has met parents in the same boat and doesn't feel quite so alone. I hope you find that support too.